It has been 2 months now since I managed to wean myself off the ropinirole and then tramadol so I could be drug free when I finally see the neurologist on the 1st October (a 7mth wait!)
I didn't expect it would be easy and at first it certainly wasn't. However I thought it would be a good idea to use this time to introduce magnesium and iron. I take 3 tablets of ferrous sulphate through the day (my last blood test showed my ferritin levels had increased to 79) and in the evening I take 300mg of magnesium malate. To help me over the initial bad nights with RLS I take 2 tramadol every 3 nights to ensure I get some break from the legs. I also use Cleo Active compressions pads on my legs every day.
I really didn't expect to have much success but for the past 10 days something is working. I go to bed and sleep! I occasionally get a little breakthrough but nothing like I was suffering. I'm not sure what it is, I'm cynical enough to not expect it to last, but at the moment it feels like a miracle. I suffered RLS EVERY night prior to starting ropinirole which soon became constant from about 2pm onwards when I suffered from augmentation. I can't remember when I didn't have it.....
So I have my next course of treatment recommended by Dr Buchfuhrer to show my neurologist (I don't expect him to know anything) but wouldn't it be lovely if I didn't need it! In the meantime I continue my current course of action religiously, I daren't miss anything just in case that is the vital ingredient..... And at the same time I expect it to start again at any moment.