I've just joined this forum in the hope that someone has some answers as I think I'm going to go crazy soon!
Have pretty much had rls all my life but not very bad until I started taking Citalopram for depression just over three years ago. At first I tried to put up with it but after several months spoke to my doc and was prescribed Ropinirole. The Rop made me have to leap out of bed to throw up! I gave it up after a month but rls had eased off so all ok.
Fast forward to approx 4 months ago - still on Citalopram and the rls had been getting so bad again that I went back to doc (different doc, I moved house in that time). Doc refused to prescribe Rop but shifted me from Citalopram to Amitriptyline saying that would sort me out - also did blood test and prescribed Folic Acid. I didn't know Ami makes rls worse, but surely doc should have? Anyway, had some of my worst nights ever before seeing a different doc at the surgery. She took me off the Ami, put me back on Cit and prescribed Rop again. Yay? No. I had forgotten how bad the nausea was on the Rop. I just can't take it. I know I won't throw up if I stuff myself before taking it but I just can't stuff myself before I get into bed at night.
Back to doc - she wrote to a psychiatrist for advise about best anti-depressant for me and sent me for more blood tests. Blood all normal. Moved from Cit onto Mirtazapine. Very interesting side effects including worsening of rls - arms now joining in. Depression worse due to lack of sleep. Ok, next suggestion on the list from the psych was Lofepramine. Now only sleeping for about 2 hours a night then boing, wide awake and terrible rls!!! Mood even lower. Signed off work.
Other things... I'm overweight. I don't drink anything with caffeine, I know I don't eat enough protein and am trying to improve this. I smoke but the last time I gave up it affected my mood so badly I was signed off with depression and prescribed the Citalopram that kicked all this off.
I just don't know what to do or who to ask for advice. My GP is trying but she doesn't know either. I'm not convince the psychiatrist she contacted had any clue... What do I do? Who do I ask to see? I really can't take much more of this but short of amputation there's no other option but to keep on keeping on!