Hello all ,
I am new to this community- glad to have found it. i am 50 have had severe rls and rlmd since i was 10. have been on everything from sinemet to vicodin, mirapex to oxycontin and have only gotten progressively worse. i am currently taking 6- 8 mg of requip with limited success. i have had issues in the past of falling asleep on my feet, but it is becoming dangerous. i am hitting different parts of my head on walls, floors, etc nightly. i sometimes am in such a deluded state of mind i kneel on the floor and thinking i am in bed, i dive head first literally slamming my forehead onto tile and hardwood floors. when taking a shower to try to relax, i fall frequently and "head butt" the walls. i have no insurance and limited income- very difficult working when i can't sit still and fall asleep on my feet.my wife is a saint and it kills me to see her and our kids- 4 to 19 suffer because of my disease.
right now if there was even a 50 % chance of success or death with surgery i would volunteer to be the first guinea pig. i can't live like this anymore and if the head injuries continue i probably won't . i am literally afraid to try to go to sleep and disgusted that i cannot support my family.
don't know if anybody has advice just need to get this out.
thank you all