We’ve had a 7 month battle with the NHS and social services. I’ve explained, justified and documented why my Dad needed 1-1 care or constant supervision. It wasn’t provided. I do appreciate the huge costs involved. So, it played out as I anticipated and told them it would. And Dad fell and suffered a huge bleed to the brain that could have been avoided. He slipped into unconsciousness two weeks ago and died a week ago. I hope that you all continue to support each other and that better medication is found, or that funding can be made available without the ridiculous system currently in place in the UK. So that people can live their lives. All my Dad wanted was to have somewhere he could walk around safely. That’s what he said at his last assessment. It could have been provided. He just needed someone to help him with prompts to stand and sit safely. We did it at home successfully but as it was 24/7 we couldn’t manage it long term. And now he is gone.
Rocket chair is not catered for in care ho... - PSP Association
Rocket chair is not catered for in care homes


Leither1I'm really sorry to hear your Dad has passed and that you have had such a difficult time with the care system. It is truly heartbreaking.
So sorry to hear the sad circumstances under which you lost your Dad. All you'll probably get is an apology and they'll look into preventing future cases. It makes my blood boil and I can understand why my husband has said that he wants to leave home in a box, and not go into a home.
I really hope that wish will be granted and that I'll cope until the end.
Take heart in knowing you tried your very best for him.
I am so very sad for the loss of your precious Dad. It’s outrageous that we have to plead and beg for help for our loved ones who have worked and paid their contribution to society only to be let down when they need it to survive and live a comfortable safe life.
I agree the system needs revision as we should not be put through these horrendous assessments. It’s a progressive life limiting disease. That should be enough in my opinion.
I'm so sorry for your loss. This is heartbreaking. 💟