Like that’s going to happen.

Going through the mail today there was a letter from Larry’s gastroenterologist saying it was time for another colonoscopy. His last one must have been ten years ago. Firstly he’d never be able to drink the prep. Then there would be the results of drinking the prep should he get it down. I don’t want to think about it. I am not going to mention this reminder letter. He would insist he has to do it.

[Dadshelper]

Another thing to consider is he'd have to go under general anesthesia.

Dad had prostrate cancer right before his Dx of CBD. When he was through the last treatment, CBD Dx received, his oncologist said even if it came back they probably wouldn't treat. The reasoning was CBD complications would come into play faster then cancer

Ron

[Hidden in reply to Dadshelper]

The anesthesia came to mind last night. There some thought it might be a catalyst for neurological diseases. No idea how much it would effect him if he were to have it now. Not in a positive way I am sure.

[enjoysalud]

I support your decision and the logic. Good luck.

[aliciamq]

No kidding - burn the note😄

[SewBears]

I totally agree with everyone else. Why put him through that? I’m sure it’s far down the road on the bucket list. Forget about it. May peace be with you!

❤️

[Bettina545 in reply to SewBears]

I fully agree as well. My hub and I tried to deal with colonoscopy prep and because of his PSP

It was a nightmare. He will never attempt another colonoscopy!!!!!!!!!

[dollydott]

Agree with you Jeff it would be far too stressful for Larry and you.

Lynda 💜

[NannaB]

My husband had a similar letter. I telephoned and explained the situation and was told there was no problem and to ignore it, he had been hospitalised 4 times in the past with ulcerative colitis. I did the same when the Poo sticks for bowel cancer came. The person I spoke to then insisted she spoke to his GP to confirm what I said. Colin was also being investigated for prostate problems but tests stopped when they would become invasive when I asked the specialist if he would die from the PSP before prostate cancer. There is no point in putting someone through anything uncomfortable or difficult if it won’t help is there?

XxxX

[AJK2001]

There comes a point when it's better to just let things be, I'm with aliciamq, burn the note, always like a good bonfire, so satisfying!

[Tippyleaf]

Ohhhhh no Bowel prep and PSP are not a good combo!!!! Absolutely agree don’t go there- life is tough enough without that too!!!

Love Tippy

[Heady]

I agree with everyone. Ignore it! They wanted to do various tests on Steve, bowels for Cancer. Bone tests, because he kept breaking them. Never even told him. Somethings are best kept quiet. He has the worst there is, so why worry about the trivia.

Lots of love

Anne

[AliBee1]

Hi Jeff

I cancelled my husbands last one which was 3 years from the one before. He would not have understood any of it and he would have been under unrequired stress and certainly would not have managed the drinking so I think that you are doingthe right thing in Larry's best interest. Good luck AliBee

[Christine47]

I suggest you request a Fecal Immunchemical Test or FIT Kit from his gastroenterologist for colon cancer screening. It is done at home...easy, no prep, no anesthesia, no stress, etc. It may not be a part of the "standard protocol" but much more realistic for a PSP patient.

[doglington]

I agree with everyone.

When Chris was diagnosed with PSP we stopped all other investigations and treatment - Prostate cancer etc

Its about a hierarchy really. Its enough to focus on PSP

love, Jean x

[Hidden]

In my opinion you made the right decision!

[easterncedar]

You're right. That's an easy call - No likely benefit to be had for lots of trouble and discomfort, and the anesthesia risk with PSP is very significant. When I raised the issue of the dangers with his doctor, he agreed, and my guy had a bladder cancer removed with no anesthesia because of the danger of worsening the dementia.

Anesthesia can be dangerous for the mentally fragile. An elderly cousin had knee surgery and came to consciousness afterwards without her memory. She never recovered. The problem may come from the lowering of body temp during surgery, and if surgery is necessary it is advisable to ask that this not be done.

[Katiebow]

Just bin it, what's the point in putting them through a stressful procedure for no reason. I didn't let Ben know of the bowel cancer test had arrived by post, just made sure he had flu jab, 3 monthly vitamin b6 jabs to keep him as healthy as possible but anything that would be invasive was ignored.

Kate xxx