PSP Association
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Gone but not forgotten.

Well yesterday afternoon at 3.40 ger stopped breathing. He went from gasping to peaceful long breaths. All family and couple of friends with him. A lovely memory of that time. Took doc nearly 4 hours to come to pronounce death and then today I took his death cert to the registrar. They wouldnt accept it and neither would the coroner. The doc had to do a second one which i hope is right so the registrar will accept tomorrow. Nothing is easy in this life.

God bless you all. Marie

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Hi Marie, I am so sorry that Ger has now left you. May he rest in peace, finally free from this evil, evil disease.

The registrar, didn't like Steve's death certificate at first, computer didn't accept PSP as a reason, but after several phone calls, he was told that yes, PSP did exist! Hope they will accept your second certificate. Beware, if you have a passport to hand over, they will cut the corner off. This upset me and I know others have been equally affected.

You are right, nothing is easy, especially now. Please take care of yourself. Let others look after you, do things for you. Only do the most important things, nothing has to be done today or even tomorrow.

There is only one right way to deal with grief, that's your way and at your own pace.

I feel your pain, your numbness, your relief and devastation that Ger has passed away. We are all still here for you, our shoulders just as broad, to hold you and comfort you.

Sending you and very large hug and much love

Anne

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Hi anne. Thank you for your kind and encouraging words. I think i am running on auto pilot at the moment and the reality of what has happened hasn't really sunk in yet. Perhaps for the best at the moment.

Marie

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A big warm embrace to you, Marie. You have been so stalwart for your ger. I hope you can rest now, for a while. Even when it's expected, even when it's peaceful, it is a terrible wrench. Take care of yourself. Love, Sarah

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Hello Sarah. Thank you. A warm embrace is never to be turned down.

All the best. Marie

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I'm so sorry to hear your sad sad news. Sending you love and prayers. Xx

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Oh Marie what to say? He is not suffering anymore and that is a big plus. The downside is you have lost the man you loved. That is so hard to come to terms with. It sounds like he had a peaceful death and that must be a great consolation for you and the family. There is nothing more you could have done for him Marie, you have been so good.

I had the full wording put on G's death certificate just in case! I don't know why I even thought about that at the time but oddly I did. I suppose I thought the registrar might not know what the initials meant. So try and get the full name on the death certificate if you can. You don't need more hassle at present?

Lots of love to you and big hugs.

Marie x (the other one).

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Hi marie. I do think i did all i could for ger and kept him as comfortable as possible. The only downside was not being able to take him to ireland this year and him not understanding why. I found that quite upsetting.

Like the rest of you strong women on here, i will survive.

Marie

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Marie you were so good to Ger. I totally understand how you feel about not being able to take him to Ireland. I had that too and can still see G trying hard not to cry. He knew he was dying and like Ger wanted to see where he had grown up one last time.

It's so very sad isn't it? You did the right thing though. You would have been in an awful situation had something happened to him while you were there.

Yes you will survive Marie. We are always here to help you through this.

Lots if love and a great big hug to you.

Marie x (the other one)

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I’m so very sorry Marie. Sending you much love at this most heartbreaking time x

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Thank you. Marie

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i agree with you all

lol jill

xxxxxx

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Hello Marie yet another post I read crying. I am so terribly sorry that Ger has departed from this world but no longer suffering. Love and hugs to you. Jxx

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Hi

So sorry, i convince myself i am doing my grieving now who am i kidding.

Julie x

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Unfortunately Julie,you are going through the grieving process, it's just there is a lot more ahead of you. I think it does help in one way, you can appreciate what is ahead and are a bit more mentally prepared. I feel that I have missed the anger phase, that all happened several years ago and counselling got me through.

Sending big hug and much love

Lots of love

Anne

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God saw the road was getting rough.

the hill too steep to climb,

so he took him by the hand,

and said let peace be thine.

Marie,Take care of yourself at this sad,sad time. Much love

Althea

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So beautiful Althea.

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Hi Marie so sorry to hear ger has passed away, he is now free from this awful illness, sending you a big hug . Yvonne xxxx

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Dear Marie, sad to hear your sad news, it must feel bitter/sweet. On one hand knowing he is no longer suffering the agonies of this terrible disease and on the other, losing he man you love.

I'm sorry that the registration didn't go smoothly, I know I will want PSP recorded, one to acknowledge that this disease exists and the other for family history.

Sending a big warm hug to you

Love Kate xxx

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Dear Marie, so sorry that Ger has gone but at least you know it was a peaceful end. Thoughts are with you.

xx

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Hi Marie,

Sadly another life lost......

Since I joined the forum I have shared the feelings of caring love-ones and every time I read of their departure I shed a tear.

All love,

Patrick.

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Dear Marie, may the Good Lord comfort you in the coming days. Knowing that Ger is no longer fighting this mean disease will provide some comfort, but we still miss those who we loved and cared for so intensely during their final years of life.

Hugs and Love coming your way,

Ketchupman

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So very sorry for your loss. xx

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So sorry. Ger is at peace. Dwell on the good times and how fortunate you were to have had Ger all of that time. Xxoo

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So sorry, Marie. Its two weeks since Chris died and I'm still running on auto-pilot. I think its a way of protecting ourselves.

I find its about separating the recent memories from the main ones of your life together.

Big hug, Marie - Ive been hugged to bits the last fortnight and it does help !

love, Jean xx

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Marie

I'm sorry to hear of Ger's passing but glad to hear his final journey was a peaceful one.

Time to take care of yourself.

Dee

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Bless you at this difficult time. I know it will be my cross soon enough and appreciate your insights and memories.

Cuttercat

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I'm so sorry Marie. I know how you feel, having been there. However every time I read of another lovely person finally losing out to this awful disease, I just burst into tears.

You need to ensure that you give yourself time to grieve properly. It's not a quick process, but rest assured Ill be thinking of you and your family. I am glad it was a peaceful final few moments, that's the best way for anyone with PSP to go, it would appear.

Big hugs for the road ahead.

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So sorry Marie for your loss, the end is so bitter sweet no more of this dreded psp take care of your self will pray for you. Many hugs. Nettie

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Hello Marie

I'm so sorry to hear Ger has died. You have cared for him to the end and kept him as comfortable as possible. How are coping? It's very hard at the

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Sorry Marie I pressed the wrong button. .. it's a difficult time now but your family is with you and all on this site are thinking of you. Lots of love Maddy xx

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So sorry Marie. Please keep us posted on how you do. I will be praying for you and hope this next journey will be less painful then your last. Xxoo. Diana

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