My mum sadly passed away after around 5 years with psp. She was getting a lot worse in the end and struggling to communicate and to eat.
She died of a heart attack which I haven't really heard of being one of the causes of death for this terrible illness?
But then knowing some of the ways people can go I think she went in one of the more peaceful.
We've set up a tribute fund for her and so hoping to raise some money for PSP and also some awareness. What a horrid illness and 66 is certainly no age to go either