Well George is in hospital again with a chest infection and urine infection, he is very poorly, have sat up there all day with my daughter, other daughter came later, he slept for most of the day. Called for an ambulance they took ages even though 111 called them to arrange it, we had 3 phone calls from the ambulance station, to say they were very busy, I had to ring 999 twice, in the second phone call I had to tell a little white lie, George was in so much pain, his catheter was blocked, you can imagine the pain he was in, so, 5 hours later the ambulance came rushed George to hospital we had blues and twos going there. We were told to wait in the family room and we waited and waited only to be told that they did not know we were there, then had to wait for another doctor to see George so we got home at 2 o'clock in the morning, eating toast and drinking tea so went to bed at 3 o'clock. Up early to get back to the hospital spent the day there, George very poorly. Yvonne xxxxx
Hospital : Well George is in hospital again... - PSP Association
Hospital
Oh dear Yvonne, I'm thinking of you with love ❤️ xx
Thank you pat how are you doing? Xxxx
Not great Yvonne, I miss Keith so much, I'm finding it really hard to accept that he's gone from me, I can't stop crying, I don't know where all the water is coming from, I'm so so sad....Pat xx
Pat you were together such a long time, when you love someone that much, it must be very hard. Let the tears comes time is a healer, PSP is a horrible illness, Keith is away from it and it can't hurt him anymore, you have the love of your children and grandchildren to keep you going. Pat it is all so raw it is only natural to feel the way you do. Sending you a big hug. Yvonne xxxx
Bless you Yvonne, thank you!....xx
Poor you Yvonne. And George, of course.
What a trial. Its not good enough. You are certainly being tested !!
Thinking of you both, love and hugs from Jean xx
Yvonne, I am stopping right now to pray for your George, and for you. What a nightmare to wait so long for a transport! That is completely unacceptable, but what can you do besides keep calling....please keep us informed, and we will certainly have you on our minds and in our hearts in the hours and days to come.
Thank you from your prayers most welcome xxxx
How hard this is on you. I am praying for you both. HUGS.
Thank you 😊 xxx
Thinking of you both Yvonne.
Sending you a hug.
XxxX
Thank you Bev xxx
Poor dear! Hang in there, sending hugs and prayers.
Thank you so much it means a lot. Xxx
Can you get referred to Hospice? Sounds like that could be the care he needs after so many infections. His body must be exhausted and hospital don't seem to be able to give him enough care!
Found the same thing with my love. They are focused on recovery and are not set up for end of life care (or PSP, CBD, etc).
Try asking for a referral to a Hospice specialist, or Palliative Care specialist. I would expect better and more sympathetic treatment from their quarter. Is all I can suggest.
Dear Yvonne, it may be that George is too weak to get home again, and Hospice could be what he needs.
I only wish I had persevered with it for my love!
Thinking of you.
Big hug!
Jen xxx
Thinking of you. What a trauma just getting to the hospital and then be left waiting around not knowing for so long. Things like this just add to the already stressful and emotional situation of being worried sick about how ill your loved one is.
Really hope George has been made comfortable and today is brighter for you all x
Thinking of you both. Jane xx
Oh no not another infection Yvonne, poor George and poor you. Sending my love and a big hug to you both. Xxx
Aww god Yvonne I'm so so sorry! Another nightmare for you all!! Sending you loads of love and huge hugs!
Let's hope today is a better day ❤ x
Dear Yvonne, thinking of you and George. Sending much strength and love to you all and of course a huge hug.
Lots of love
Anne
My thoughts are with you Yvonne, you are having a really tough time, even worse than `normal` - so hang on in there.
xx
Thank you all, sitting in the hospital with George, the sister didn't want me to come from early in the morning. I told her I was here to help George and if she wanted me to go, I would go home and they could deal with George, he was very agitated, they soon changed there mind, they had not given him any meds, no breakfast, and he was really thirsty so no drink, this was at 10 o'clock this morning. Just want to get him home xxxx thank you for all your hugs much appreciated xxx Yvonne xxxxx
Yvonne
Don't let them stop you being with George. That makes me so angry! Then to think they hadn't fed him or given him anything to drink?! Poor man. You make sure you do what you want to. Tell the PALs people you are not happy.
I don't think I told you what happened when Garry was in hospital? My son stayed with him 2 nights and on night 3 I stayed. I told my kids I was going to ask for a mattress and they thought I was mad! Anyway decided to ask them for something to lie on as I was staying the night. They went and got a chair which raised up at the legs but I have to say it wasn't great on the back as it didn't go back far enough. Anyway I was just going to sleep when I was told we were going to move to another ward soon. I'm afraid I refused to move! The nurse in charge was looking a bit desperate so I told her I wanted to talk to the Coordinator. He came and I let him know in no uncertain terms how angry I was. I discovered they had known all day they were moving Garry but hadn't said.
Anyway. I was told they had deep cleaned a room for Garry so gave in and moved. Much to the relief of the Coordinator. Can you see the headlines?
I have to say he was always offered food. If they had not given him something I would have caused a scene. When we moved the sister on the new ward said to a nurse: " well this is going to be interesting!". I had complained to PALs before and the Matrons were falling over themselves to be nice. I have to say they were, and it did help.
When the funeral is over and I feel strong enough I am going to complain again to PALs! This time about the doctors. At night there were only junior doctors on duty. I felt sorry for them as they were really thrown in at the deep end. The guys on the big money were nowhere to be seen! The government needs to get a grip of things!
So don't let them away with anything Yvonne. Not sure what hospital George is in but I remember you had problems before?
Someone suggested a move to the Hospice and that is my biggest regret. I should have made sure that happened to Garry. He was too ill at the start and then when I asked again it was too late. They knew he wanted to die there though and there was a time he could have moved.
Thinking of you and George and saying prayers for you both.
Marie x
Thank you Marie will complain for sure xxx
Thinking of you and George, Yvonne. Love and peace, Ec
The feeling and emotions that one has to endure with PSP is so exhausting. You want it to end but if it ends you lose.
Hang in Yvonne and do try to remember to take care of yourself.
Dee in BC
Oh my. So scary and sad. I'm praying for you both.
Cuttercat
Thank you xxxx
Hi Yvonne, sorry to hear this latest turn of events, bad enough knowing George has chest and urine infections but having to cope with all the other hassle is just too much. Sending you love and keeping you in my prayers. Nanny857xx
Thank you he seemed much better today, so pumped up with antibiotics, he was laying there laughing and talking I could not understand what he was saying, but he made me laugh . Yvonne xxxx
Long may he continue laughing and talking and you can laugh with him.❤
Hi Yvonne,
I'm sorry to hear that. I hope he will get better soon. We have the same thing. Since December my father has been 4 times hospitalized. Does it happen that often with George? They always say he aspirated. He's been on such a heave antibiotics.
He gets lots of urine infections, but only hospitalised once last year for a very bad chest infection. Yvonne xxxxx
All the best to you Yvonne. All we can do is to stay strong and support them and be there for them.
Yes I agree with you x
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