V suffers hugely from saliva excess and also clear mucous in her nose especially in the evening - can't stop the flow . We have tried Hyoscine but with little affect - I seem to remember someone writing about eye drops under the tongue a while back - can any one enlighten me ? Our doctor was interested >
Georgepa
Atropine eye drops. S uses this occassionally. One drop seems to stop the saliva for a couple of weeks. Haven't tried it for his nose, that runs for England when eating his breakfast. Perhaps I ought to, it is only when he eats, so must have something to do with saliva.
Lots of love
Heady
My mum is suffering from really thick saliva and we were thinking of starting her on atropine drops. Can I just ask the strength of the drops? She can't have grape juice etc because she is diabetic.
The 1% atropine eyedrop solution has been a miracle for us. One drop in the morning and one at night is what I have found keeps the really gluey suffocating mucous in check. We haven't used the suction machine since we began the atropine, and the nighttime choking was really horrible and scary and torturing up to that point. If I miss a dose, the problem arises right away. I have sometimes given another dose midday, but generally the two-dose regime - just one drop - works for us. I am sorry not to have anything for a drippy nose.
Yes George Keith uses them, Atropine eye drops, one drop morning and evening under the tongue, they do seem to help. It was the PSP specialist nurse who advised us to try them, I believe they can be used three times daily if necessary but I would check that in more detail if I were you, hope that helps!
Love Pat xx
Hi, is there any special place under the tongue for atropin? And does it requires any special precautions?
My doctor said the drop is very bitter and it is better you don't use it.
She gave scopoderm which after a while it is not effective and causes ear sensitivity and secretions.
Hi, no not really as long as it's under the tongue it should be fine, try it and then see what you think, it can't do any harm....xx
Thanks one and all - I will pass it on to the Dr and see if we can give it a tryout .Must be worth it I am getting through boxes of tissues , kitchen roll and handkerchiefs at an alarming rate . Blowing someone else's nose is an art form isn't it .I pinch V's nose she doesn't blow I squeeze hopefully . then give up and then V explodes and I think "oh bxxxxr something else to clear up !"
Keep telling you, get a dog!!!
Lots of love
Heady
what ? you use a dog instead of a handkerchief ? Do they machine wash and tumble dry ?Or do you dispose when you have used it couple of times ?
Heady, you are BAD!!!
Do you have a suction machine for her saliva? I wonder if you can use that for her nose> You know if it's not real gooey , even if it is....get two different wands, one for mouth the other for nose....
I don't think sinus has much to do with salivary glands...My husband used to take Loratadine which is used for allergies....dries up the nose....or sinuses...
AVB
That 's an anti histamine isn't it ?- if so done that one again limited result .
Glycopyrronium Bromide. C has 3 ml up to 3 times a day depending how he is that day. Sometimes he has less mucous and it can be thick and stringy so then I reduce the meds. A side effect can be constipation so I reduce the meds if he hasn't "been" for a c ouple of days.
Sorry if I've repeated anything anyone else has said. Haven't time to read all the replies yet.
X
NannaB, Has C experienced constipation? B has been very constipated and he started this stuff in June or July....it's only .been about 3 weeks for the bathroom disruption....about same time he got the catheter ...so I don't know if either or both or only one are the culprits!
AVB
C's bowels have been irregular since the beginning of PSP and then we had that awful year of colitis. Now he can have up to about 3 weeks of going every day or every other day and then nothing for 3 or 4 days. If he hasn't been for a couple of days I stop the Glyco. This week he went on Saturday and then nothing so I stopped it on Tuesday. I intended giving him Lactulose yesterday after the sitter went but he performed when she was here...twice!!! and then last night he went again. The carer apologised as she managed to get it on 2 bottom sheets and one top sheets even though he was lying on two disposable sheets. We used 6 of them yesterday and 6 joss sticks!
X
NannaB,
Keeps ya busy, I must say....well thank you for sharing your remedy....B is to take 1 mg twice a day...It did not register that constipation would be a side effect, but dizzienss was brought up so I gave him half until recently. then I'd give two every other day....thought he was doing fine started giving him two at same time I started giving him the cranberry juice....now I don't know glyco or cranberry? I'm going to stop cranberry and go back to 1 a day and hopefully get him back on a schedule! His urine output has been very good lately...I tell B that if we could have a dollar for every ml of gold liquid...we'd be sitting more pretty than he is now LOL!
PS Whats a joss stick?
AVB
A joss stick is one of those perfume sticks my boys used to burn. They had some very strange smelling sticks but I burn mainly lavendar ones, although I did buy some last week called "Sensuality"! They contain Ylang Ylang, nutmeg and Patchouli, well I know what nutmeg is but not the other stuff. Maybe I'd have felt more sensual if It had totally masked the smell of what was under my nose. It did improve the rooms aroma though. I then took the stick from the holder and walked it around the house, including the porch just in case we had callers.
X
Oh we call them incense sticks...I need that more for the stinky dog! haha
🐶 🙊X
NannaB, sorry to ask YET AGAIN, but what was that University thing you go to... U3...UB40 hahaha
I need to do something for B and me ...I'm going crazy..er...
AVB
Ha ha! I haven't learnt any UB40 tunes to play on my Uke yet. I did go into a shop once and ask for UB40 when I meant WD 40 to loosen a stiff bolt. I felt a real idiot when the man laughed but didn't know why he was laughing. It's the U3A, university of the 3rd age. I hope you find something to do. We don't want you going crazy as well, there are enough of us about already.
😆
X
haaha...Hey have you heard that new one from WD40? I heard it's real slick! LOL
U3A, U3A, U3A.....I'm trying to keep it stuck in my head before it slips out like cog in a well oiled gear!
I have been looking for activities for the adult disabled.......you know where I found most of things to do for disabled...Not in US....but in your part of the world...The UK!!!
I did find skiing for brain injured....B used to love to ski....of course it sounds like that would cost about the same as sending one of our kids to college! And one mogul and there goes Birkee down the hill by himself....face forward till he smoothly lands right at entrance to the chalet......no broken bones; of course no beard left either!!!hahaha moving on!
thanks for the info once again...U3A Rules!
AVB
My hubby has one atropine drop at night,works well,butdosage is critical.Also oral hygiene has to be essential as we produce saliva for a reason,and mouth infection is of higher risk.But they work well xx
J was on 1 atropine drop 2X per day. It worked but caused thrush on tongue due to mouth very dry (also on high dose of amitriptyline which also has a side effect of drying up saliva). We tried cutting back on atropine immediate result was chest infection. Now on one drop atropine under tongue 4x per day with tongue brushed with corsodyl mouthwash to keep thrush away.
You may have problems with your gp prescribing atropine as it is not licenced for oral use in uk. Mine needed it to be recommended by paliative consultant then he was fine.
Good luck
M has hyocene patches, they work on over production of saliva but really thicken up the mucus causing bad chokes so we rotate 2 days patch on 3 days without. She gets a little disorientation but not as bad as when tried the patches 2 year ago. Nursing home started using patches for 3 months seems to provide a saliva control. She also has atropine drops but little effect.
We are going to have a second go at Botox to the saliva glands next week the consultant who does it says it is a 60% success rate for Parkinson's but lower for other neurological conditions, M had a treatment in March but not successful. Hope 2nd time lucky.
Tim
