PSP in common but such varying difficulties.

[kay1]

I am waiting for my husband to be transferred from hospital to nursing care home. Hadn't even entered out heads ten weeks ago, we coped with the irritating PSP symptoms, Just one fall too many, fractured humerous, and one hand just isn't enough to keep balance. He has not been allowed out of bed for the four weeks he has been in hospital - i just don't believe it when i am told his balance has gone completely and he needs full time nursing care. How can things have got this bad in ten weeks? It is almost impossible to understand what he tries to say, and how do i know if he understands what is happening to him??? Although the PSP is our common denominator it seems each carer has to deal with a different difficult heartbreaking problem.

[LindanTerry]

I am so sorry to hear about your husband.We are just starting out on our journey with PSP,and thankfully it seems to be a slow process at the moment.

Our good wishes are with you both.

Kind regards Linda

[ineke]

Am so sorry to have had this news about yr husband and do no know how it will effect his brain. With me, I still know everything but am very confused and I also seem to detoriate much faster than (I) expected. Lots of best wishes for both of you. God bless

ineke

[kay1]

Thank you so much for your kind comments x

[Hidden]

My husband's condition deteriorated very rapidly in a very short period of time.

I felt so helpless because I hadn't been informed of this possibility by any of the Neurologists we had seen. He got to the point that he avoided conversation as it was so difficult for him. I found that this part of PSP was the worst. We used to laugh a lot and talk a lot but all of this had gone. It is so very painful.

Regards

Lina

[Kathy]

Kay,

Its lovely to see a picture of your husband and put a face to the name! I'm sorry he has deteriorated so much in the last 10 weeks

Does the home offer physio? You might be able to get him back on his feet.

Mum has also shown a marked deterioration in the last month but we can find no particular reason for it. Its a b***** this disease, isn't it??

Love

Kathy x

[kay1]

The home doesn't offer physio but i think the hospital had tried with him, but he can't even sit up himself now. I agree Lina the loss of speech is horendous, and i feel so bad because i can't understand, interpret what is being said, and he gets frstrated because he know what he wants to say. He did manage to say loud and clear today that he is coming home tomorrow and wants egg and bacon, he is on a soft diet, i told him thet he could have egg and bacon smoothie!