The other side of ADT.: Hey Fellas, I... - Prostate Cancer A...

Prostate Cancer And Gay Men

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The other side of ADT.

Dreamweaverman profile image
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Hey Fellas, I am posting in hopes that some of you will post your experiences after completing ADT. My biggest challenge right now is the ADT. I really want to feel sexually attracted to my partner, but as much as my brain knows that I love him, but a 0% testosterone level and no libido, has me so frustrated. Has anyone gone through ADT and regained their testosterone level as well as the desire for sex. I am also doing sexual rehabilitation therapy with Trimix, but it mostly hurts because I am not turned on. No matter how much I inject I never get fully erect. I think this is because the mind body connection is missing without testosterone. I'm grateful to be alive and that I have a great chance at curing this cancer thing, but sometimes I just find myself thinking the way I feel will never change. I welcome all feedback.

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Dreamweaverman
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Travelinman profile image
Travelinman

Hey, Dreamweaverman. I think that you previously mentioned that you were seeing Dr. John Mulhall for penile rehab, as am I. If that's the case, have you spoken to his team about not getting fully erect? I am not on ADT yet (it will be coming for me in the months or year ahead), and so I can't speak personally about an experience with hormone therapy, but I started having conversations with Dr. Mulhall and his team way, way in advance (several years ago) and I recall them mentioning something about adjustments to the medication if the erections were too weak or lasted too long. I also seem to remember from my discussions with them that they want their patients to have optimal erections to have the best rehab. But again, it's been awhile, and I haven't needed to touch base with Dr. Mulhall in a year.

The earliest conversations that I started having with him about this began way back in 2015.

Keep hanging in there!

Tall_Allen profile image
Tall_Allen

The time until your T resumes is proportional to how long you've been on it.

spencoid2 profile image
spencoid2

Without testosterone you will likely have no interest in sex, zero, none. No matter how much you work on the physical aspects of getting an erection it will be a big challenge because the interest will not be there. While on Lupron, I continued to find attractive men attractive but had no sexual interest in them. I saw attractive men the way I always saw attractive women, aesthetically beautiful but no sexual interest. After being off Lupron for maybe 6 months, I became my normal horny self again.

JimVanHorn profile image
JimVanHorn

Hello Dreamweaverman, I have been off Eligard for 1 year now. I was on Eligard for 6 1/2 years. My T level was 11 in December (normal about 360). In April T level was 23. When I stopped Eligard a year ago I had hard erections when I would pee. But I can not pee with an erection so I would watch TV for 10 minutes and go back in and pee some more. This lasted for 6 weeks and has gone away. My balls were very small like little cotton balls (mushy) and now they are more firm but smaller than before. I see the Oncologist on June 21st to find out the more recent labs and we are going to discuss T therapy. I can get erections watching porno movies and have a dry orgasm. I am thinking about sex more often than before. My penis is very much smaller than it was. Often there are extremely small cancer cells hat can be stimulated by testosterone therapy so you my try rectal sex with your lover and be thankful you are alive. With time this problem will get better.

Ian_G profile image
Ian_G

I was on intermittent ADT for something like 8 years. Going off it was like going through puberty. Yes, the interest returns, mentally and physically. I am now on ADT "permanently", though results have been good so I may be allowed off it at the end of the year for a rest.

My issue with ADT is mental. Members here warned me and they were right. It effects my thinking. I can no longer problem solve which was my I.T. job, I was getting anxiety whenever a client walked in with a problem or when the phone rang, I gave up work 3 months ago and that relieved a lot of stress.

Teddski profile image
Teddski

I have been on ADT for six months now and just finishing radiation therapy -- the lack of sexual drive... is basically driving are crazy. I see some very hot guys, but then realize my dick is not going to be able to do much. I can get semi hard with some ejaculation, but it is not the same. I have hosted parties with the gay nudist group, but naked guys are fun to be with, but my body just does not have a sexual reaction. Now he oncology doctor wants me to stay on the ADT for another year as he watches my PSA, but my tummy is getting flabby and in another 18 months I may need a bra!

JimVanHorn profile image
JimVanHorn

Hello again, I stopped ADT in April 2018 and in December my T was 11. Now it is 74 so it is going up slowly. My doctor does not want me to supplement my T levels because of latent cancer cells. I woke up with a woody last week! First one in eleven years! I can masturbate and have a dry orgasm. My penis is about half the size as before. But I am horny at times and I am more interested in sex. For eleven years I could look at people as beautiful but not sexually. I enjoy getting someone off and cuddling, I know it is not the same, but I am alive.

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