Looking for friends who have gone thr... - Prostate Cancer A...

Prostate Cancer And Gay Men

1,452 members1,299 posts

Looking for friends who have gone through prostate cancer

panagiotis profile image
15 Replies

It's been 10 years since I had my prostatectomy. I was 57 at the time and it was a robotic surgery which fortunately saved my sexual nerves. As you all know nothing is the same after surgery.

I now live in Florida. When I lived in Manhattan there was a rather large support group and I had developed some wonderful friendships and support both in person as well as on line.

I am looking to find other men who are in a similar situation for support and friendship and hopefully not too far geographically.

Thank you guys.

Sincerely,

Peter

Written by
panagiotis profile image
panagiotis
To view profiles and participate in discussions please or .
Read more about...
15 Replies

Hi Peter, I'm new to this site and newly diagnosed. I had my biopsy on June 3, and the results came back with one 3+3 and two 3+4. I'm still looking at options regarding treatment, but I'm grateful for the experiences of others, not necessarily to make my decision for me, but to know all the ramifications and pathways that may results from whatever treatment I choose.

I'll be 67 in a few weeks, but I'm aiming for another 25-30 years ahead of me. I live in Western Kentucky, near Evansville, Indiana, with my husband.

It's nice to meet you!

Steve

ejefowe profile image
ejefowe

Hi Peter. I'm 66 and had my prostate removed robotically 2 years ago. All tests have, so far, shown that the cancer was removed completely, but I have zero erectile function. I am a closeted bisexual man living in a straight marriage. Sex in my marriage started declining in my 40s. I do love me wife, and enjoy the sex we do have. I started exploring sex with men at that time as I would not spend the rest of my life with infrequent sex. I am able to achieve an erection with a vacuum pump or injections. Both methods have allowed me to have vaginal and anal sex. I have joined 2 Zoom support groups for english-speaking men who have had or are dealing with prostate cancer. 1 group is all Canadian Gay men, and 1 group is with straight men from english speaking countries all over the world. I highly suggest you finding a group to join. Talking to like-minded men has been a lifeline!....and of course..... I am here to talk to whenever you'd like.

panagiotis profile image
panagiotis in reply toejefowe

Please let me know what web sites you are talking about. I am always interested.

I have met many married men who have had the surgery and chose to have sex with men after their prostate was removed. It is great if you can find a play mate who has gone through the same procedure.

I do wish there was a dating app for guys like us.

I learned how to take care of myself with the pump and the fleshlight, etc.., but nothing comes close to being with someone and experiencing the intimacy.

Good luck and please let me know the web sites

ejefowe profile image
ejefowe in reply topanagiotis

this is the worldwide group. We meet almost monthly

recoveringman.net

Check out the CONTACT to see how to register for meetings. As I said, this is NOT necessarily a group for straight men. The members know I am married to a woman, but I have, on several occasions, mentioned that I have sex with men before and after my prostate operation.

The one specifically for gay men is a Canada based group that I discovered because one of the men in my Recovering Man group runs the Canadian meeting.

panagiotis profile image
panagiotis in reply toejefowe

Many thanks indeed. What is the name of the group in Canada? I am on a mission these days to find friends and companionship.

ejefowe profile image
ejefowe

Hi Peter! Sorry for the delay. It took a while to get in touch with the leader of the group I was talking about. You can contact Alex at GBTQ@prostatecancersupport.ca

There's more info at gbtqprostatecancersupport.ca

And to register for the next meeting, click here>

us02web.zoom.us/meeting/reg...

Sheldon

panagiotis profile image
panagiotis in reply toejefowe

Thank you so much Sheldon. I have an appointment with my urologist on Tuesday and we will be discussing all this. He has expressed interest in helping me develop some kind of support forum in the Fort Lauderdale area and was quite surprised that one does not exist. I greatly appreciate this information and will explore the various sites when I have some down time.

Sincerely,

Peter

ejefowe profile image
ejefowe

Best of luck Peter! Maybe we'll see each other at the Zoom meeting!!

panagiotis profile image
panagiotis in reply toejefowe

Hi Sheldon,

I registered for the meeting on the 24th as I ended up cancelling my trip to NY

Many thanks again

Peter

ejefowe profile image
ejefowe in reply topanagiotis

Hi Peter! That's great! See you on the 24th!

ejefowe profile image
ejefowe in reply topanagiotis

Hi Peter. I was having so much trouble signing into the Zoom meeting yesterday and was flustered that I did not say HELLO in person!! (my bad, forgive me!) How did you find the meeting? Is it what you are looking for?

Darryl profile image
DarrylPartner

Malecare (the nonprofit that runs this community) has a biweekly gay prostate cancer support group on zoom. Send me your email and I will send you the info. Also we would be happy to help you set up a group in your area. Let me know! Darryl @ malecare.org

panagiotis profile image
panagiotis in reply toDarryl

Hi Daryl,

Thank you so much.

I am in the Fort Lauderdale area and am looking for a support group for men like us. Any help will be greatly appreciated.

Sincerely,

Peter

panagiotis profile image
panagiotis in reply toDarryl

Hi Daryl,

The best email for me is petersprivatelounge@gmail.com

Many thanks,

Peter

Darryl profile image
DarrylPartner

Malecare’s Florida groups closed during covid. Nothing has reopened in Fort Lauderdale. Email me if you want to start one

Not what you're looking for?

You may also like...

Recurrent Prostate Cancer

Hello. I was initially diagnosed with prostate cancer in July 2014. Been cancer free until March...

Gayman w prostate cancer

i was diagnosed w prostate cancer this past August 2018..surgery scheduled next month in December...
Spicyboy profile image

Prostate Cancer in Brazil

I am new here. I am a single gay male, a citizen of the USA and a permanent resident of Brazil. . I...
Caucaia profile image

Looking For Prostate Cancer Survivors For Friendship And/Or Dating

I am a 65 year old prostate cancer survivor of almost 10 years. I did have a small scare during...

Prostate Cancer Status

How would I find a gay prostate cancer support group in Denver, Colorado? I am eight months into a...
Teddski profile image

Moderation team

Bethishere profile image
BethishereAdministrator
Number6 profile image
Number6Administrator
Darryl profile image
DarrylPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.