Prostate Cancer just about

I am 59 years old, prostate cancer , yes years ago, age 54. Gleason Score 4-5, PSA, 4. Had a robotic  prostectomy. NO side effects or conditions  Problem Erectile Dysfunction. No social life. I work out at the gym 3x a week completing a rigorous Cross Fit/Weight training regiment. Despite keeping fit, once men find out, I cannot get an erection, "the make nice routine" begins and the date ends. Thus, I have had no intimacy in over 4 years. I have friends but with no physical intimacy, I have this constant melancoly feeling that does not go away. I tried the ED drugs, the tortuously painful pump, do not want the penis implant, and do not like to inject my penis with the  medication to create the erection.  This leaves nothing else.  I need to hear from other men to learn how you are coping and most importantly ,what we can do,allowing us to create fulfilling relationships with other men that include intimacy and the potential of a LTR.

in addition, I found out I did not have to have the operation. The amount of cancer was microscopic, no tumor, a handful of cells. I could have been a candidate of the SPOT-ectomy where the surgeon goes in  to the prostate, like a biopsy, takes out the few cancer areas, and then monitors PSA for the next year. Most with this small level of cancer are essentially "cured' When I found this out, it pissed off

12 Replies

  • Sorry to say your not the only man a doctor has operated on when he didn't have to. To many men are left impotent and the doctor really doesn't seem to care. Wish all men could have a group like this to talk to before they have their prostrate cut out.  I had to have something done but had Proton Therapy instead of invasive surgery and had no side effects. Wish every man would at least look at having Proton Therapy before having their prostates cut. My cancer was cured an been gone since 2011. I wish you the best , you can get your erection back but you have to work on it all the time.

    Michigan Jim

  • the surgeon was horrendous and could careless

  • These dates you've been on making nice, no call back, these guys are total jerks! You are the lucky

     one they never called you back. Even before my RP I'd found out to survive a relationship sex wasn't necessary. Nice but not necessary. The most erotic night I've ever spent with someone was just the conversation and erotic touching. No orgasim had by either of us. I was younger and it still remains my best sexual memory. Hang in there, he's out there, he will understand..... I would....

  • Because you're a psychotherapist, I thought you might be interested in the following study that validates everything you've been saying. They define a couple of interesting concepts:  "sexual disqualification" (exclusion from group identity because of inability to meet sexual qualifications), and "re-negotiation" (re-defining one's sexuality).

    "Threat of Sexual Disqualification: The Consequences of Erectile Dysfunction and Other Sexual Changes for Gay and Bisexual Men With Prostate Cancer"

    Have you tried the tri-mix injections and found you don't like them? What about MUSE? (it's a pellet you drop down the urethra)

  • good article. Exactly as I was saying

  • So OK, it confirms what I have been saying NOW WHAT do we do to correct this?

  • What did you think of the concept of "renegotiation?" Is that something that might work for you, perhaps with the aid of a psychotherapist?

  • I am four years out from my RP and continue to have undetectable PSA's. I have minimul problems with incontinence. I do have more problems with ED. I was at a support group last night in NY where several people talked about using Muse as a way to achieve an erection. I personally use the injuctions, but may try Muse after hearing more about it. I got the impression that with Muse it is easier to travel and take it with you. With the injections you need to keep the medication refrigerated until you use it.

  • What is MUSE? Never heard of it. It is another injectible penal erection medication? I have tried everything and nothing , except the penal injections, will work. Even then the shaft is erect on 3 sides, underside is flaccid, and head of cock soft, looks ridiculously LOPSIDED.

  • Do you live where you have access to a Urologist or other Dr who could help you with sexual rehabilitation? Your Dr should be telling you all of your options and helping you out with this. In NYC there are a number of Dr. who specialize in E.D. My understanding is that time is of the essence in rehabbing the penis. That said, Muse is a tiny pill that is inserted into the head of the penis. I feel sure that it requires a prescription. Good luck with all of this. Keep the faith.



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