Any experience with AUS placement?

[HillPond]

Five (5) years with incontinence following RP, a new oncologist has recommended AUS placement, again. He claims it will be a great improvement to my quality of life. I have resisted surgery due to negative outcomes with RP and a hernia repair experiences. One surgeon in Boston has been recommended, but I am open to surgeons in other locations based on success stories.

Also, It is also hard to imagine what the mechanism will look like and feel like once it is placed. Is it visually obvious or awkward feeling to have a release button in one's scrotum? I have become accustomed, but not happy about, climacturia and wondering if that changes with an AUS.

Any experiences will be helpful...positive or negative.

[Tall_Allen]

Everyone I know (about 4 guys) who has it, loves it.

[ejefowe in reply to Tall_Allen]

I am in a ZOOM support group for men post PC and one of the members has one. As Allen says....its amazing. He did tell us a story that made us all laugh.... He now wears a Medic Alert Bracelet that says "Artificial Urinary Sphincter in place...DO NOT INSERT A CATHETER". You gotta have a sense of humour!

[HillPond in reply to ejefowe]

...and that is a clever and funny bracelet message!

[HillPond in reply to Tall_Allen]

Thank you. That's encouraging

[lockerroombuddy in reply to Tall_Allen]

Hi TA...... I've been considering having an AUS implanted and live in Manhattan. Do you know who performed the surgery on the 4 people you know who had this procedure and claim to love it?? Much appreciated for any info you can provide.

[Tall_Allen in reply to lockerroombuddy]

They were all in California.

[lockerroombuddy in reply to Tall_Allen]

Thanks TA....appreciate your replying.

[Darryl Partner]

re the Gay Men with Prostate Cancer Zoom Support Group New members are welcome! Send me a direct message with your email address and I will set you up! You can also email me at. Darryl at Malecare dot org

[CanadaNick]

Hi! Some years ago it was recommended to me. I was told that the device has to be replaced every so often requiring additional surgery each time. As I was only in my mid 40s when I was diagnosed and underwent surgery for the prostate cancer, I decided not to have the artificial sphincter implant. I don't know if things have changed in that regard and if perhaps the devices they have now are more permanent and don't need to be replaced. Perhaps you could ask about it and let us all know what they tell you.

Best wishes!

[HillPond in reply to CanadaNick]

Thank you. The replacement issue has been one of my concerns as well. I will ask about it and get back to you.

[CanadaNick in reply to HillPond]

Thanks! I wish you good luck.