Next chapter. A new beginning - Prostate Cancer A...

Prostate Cancer And Gay Men
958 members839 posts

Next chapter. A new beginning

Tnj54
Tnj54

Hi Tnj54 here,

I'm new here, in fact I just joined yesterday. My Gleason score is a 3+4

My most recent PSA was a10.3. I just began neoadjuvant hormone therapy last week and gearing up for radiation therapy next month. Nice to see that there's a website that can be a support system at this time in my life.

16 Replies
oldestnewest

What kind of radiation? There is no evidence that hormone therapy is useful for a GS 3+4.

Tnj54
Tnj54 in reply to Tall_Allen

Tomotherapy Allen

Tall_Allen
Tall_Allen in reply to Tnj54

Do you have a radiation oncologist nearby who practices SBRT? Only 5 treatments instead of 40-44. Potency retention is 70-80%. Similar to HDR brachytherapy.

What kind of neoadjuvant hormone therapy? Shots or Casodex or both? If a shot, it's too late for a few months. If a pill, you can stop it immediately.

Tnj54
Tnj54 in reply to Tall_Allen

I like the idea of having 70-80%

Potency.

Tall_Allen
Tall_Allen in reply to Tnj54

My only lasting side effect was reduction in semen.

Tnj54
Tnj54 in reply to Tall_Allen

I would be quite happy if I had the same result.

I'd take reduction any day. Damn.

Handdrummer777
Handdrummer777 in reply to Tnj54

Indeed yes! I had to resort to a homemade device to achieve a similar result, and I'm not out of the woods yet (two more months at least of ADT).

Tnj54
Tnj54 in reply to Handdrummer777

Update... Post radiation- PSA is at 0.1 no more injections and it's nice to get an erection naturally with a little precum at climax.

Handdrummer777
Handdrummer777 in reply to Tnj54

Beautiful! Did you get the SBRT or another kind of radiation?

Tnj54
Tnj54 in reply to Handdrummer777

I had IMRT and was very satisfied with it.

Tnj54
Tnj54 in reply to Tnj54

The urologist said the cancer was contained. I received 2 injections in my stomach to prevent it from spreading a month ago . Then was told I would be given hormone injections at 3 month intervals in my bottom.

Tall_Allen
Tall_Allen in reply to Tnj54

That's Firmagon - it only lasts for one month, which is good. GS3+4 spreads VERY slowly. In fact, I know two men with that who are successfully managed on active surveillance. Where are you located?

Tnj54
Tnj54 in reply to Tall_Allen

Edison

Tall_Allen
Tall_Allen in reply to Tnj54

I suggest you talk to Michael Zelefsky at MSKCC - he does both brachytherapy and SBRT. Or go to Flushing and see Alan Katz who has done more SBRT than just about anyone. Neither will have you on hormone therapy.

Hey T, Were you able to get 2nd & 3rd opinions on treatment? You are definitely not alone my friend. We are here.

You may also like...