with the MRI and bone scan clean, i decided that with a confirmed Gleason 8 (4+4) 10% involved ( Dr. Epstein) and low PSA 3.7 at last test with my last biopsy nearing 3 months, it was time to act. Decided to schedule surgery. It was to be on 4/29/21 (45 days from now) giving me a bit more time to check out my two other possible choices. Spoke with SBRT specialist Dr. Debra Freeman and HDBR's Dr. Biagioli both are indeed highly knowledgeable as well as personable enough to explain fully what I could expected. Dr. Freeman actually phoned to see how was doing. Dr. Biogioli actually suggested surgery (for the longest lifetime)
A big, Thank You to Tall_Allen for recommending them.
On April Fools Day i get a message that my surgery could be 2weeks sooner (4/13). No more time for thinking, wouldn't be able to get in anywhere else any sooner, so i confirmed. That's when the jitters, the what if's, started. With a phone call assurance from Moffitt's surgery chief, Dr. PowSang i was still nervous but committed to my decision, I was ready.
The 4 hour 18 minute surgery went by in a second (than you anesthesia). i awoke to see my lovely wife who assured me everything went well. Well indeed, five incisions and a drain. The only real pain i had was the removal of the drain. Man that hurt! Within 2 days i could get up from a chair, sofa or bed by myself. no pain meds not even a Tylenol. Super, but it was counting the days for catheter removal (full 14 days) that took a good toll on my psyche, seeing the tube, the electric shock with some wrong movements, the bag to carry and seeing the tube coming from a place where there should never be one (sorry to repeat).
Greatest day was 4/27 not only because i was cleared to have the catheter removed but also my biopsy report was ready. The Gleason 8, even with the second opinion from Epstein, was downgraded to Gleason 7 (a 3+4), no involvement with nerves or lymph nodes and only 5% of the prostate found to be cancerous. Yippie. Life is Great! Knowing that i'm not as sure i would have made this same decision! OH Well, no turning back the clock at this point
However, with everything going so well, that i've been spooked from the constant dripping. It's not just when coughing, laughing or picking up stuff, as i've read other having to deal with, it's simply constant. I have found that it actually will stop if i lay down or am sleeping, but if i dare move to get up there is no stopping the Niagara Falls to come!
Anyone else experience this? I'm hoping for someone to tell me this too will pass and not the sign of the wrong thing being cut. In all my reading i have not read of anyone with this same problem. Incontinence dribbling is one thing but this is ridiculous!
Sorry about all the background but thought if may be helpful to others in our situation.