Hi everybody !
I would like to share the fantastic news that I today have had my 1 year / 12 month after my final radiation and the results came back with < 0.1. Like I’ve said in previous post, Sweden normally only measure down to < 0.1 and don’t offer uPSA
So, my first year of remission and I wanted to share this good news because I know most of us likes reading good news.
Best wishes Ulf
Excellent result...especially with the recurrence after failed HDR Brachy!! Here's to continued good health!!
love to hear good news!! That great!
I am happy for you.
Great news! That's a lot of radiation, but if the side effects are tolerable, that is wonderful.
Hi Ulf
Thanks for posting this, really great to hear you are doing so well. Hope the stress wasn't too bad 💚
🎉
Great results,long may it last.
Congratulations. Sounds like you took the necessary steps to achieve best results.
Congrats warrior and all the best!
Congratulations!
May the force continue!
congratulations. Good news for one is good news for all.
awesome news! Are you ok ADT?
Hi !
Thanks 🤗
Being on Orgovyx, Abiraterone and Prednisolone; yes I would say ok, not good, not bad but ok. Fatigue is always there in the background reminding me. Even if I’m able to have erection the big loss of libido is like somebody took out a big part of me. Working out of course helps out a lot but it’s sometime sad not be able to gain anything and just fight not to add fat and not loose more muscle mass. The ups and Downs of brainfog and the ups and downs mentally is sometime making me more tired.
But, it’s just to do one day at the time, take the small steps and pat myself on the shoulder that I’ve done 15 months of hormone therapy and 12 months of Abiraterone. I have my own mental image that I’m halfway through this even if I have no permanent plan with my finnish doctor how to proceed down the road if I’m still in remission in April 2026 and July 2026
But to answer, yes it’s ok but not easy and it’s important to push on with small steps
Great news.
I was diagnosed Gleason (4+5). CT & MRI showed Pelvic LNs and Seminal V. 12/3/2024. Short course of bicalutamide, then Prostap every 3 mths. 20 x 60Gy EBRT in July August. 3 months of Abi, but now on:off due to rising ALT.
My PSA has been <0.1 for last 3 months, so big hopes like you.
Similar experience on hormone therapy. I could achieve erection until mid way through EBRT but not any more. I work out at least 5 x per week, mixture of rock climbing, weight training and biking. (Also hillwaking). Have put on a layer of fat around my waist and a bit on my buttocks and upper body. (My pull ups have gone from 3 x 15kg to 3 x bw only, still deadlift 1.5 BW and rest heart rate 55)
Fatigue can be an issue, but I try and "listen to my body".
I think exercise is really important in keeping positive and hopefully preparing for post ADT.
Hi !
Thanks and great news as well for you 🤗
Seems like almost the same and probably we are mainstream in terms of side effects. One thing I noticed is that I’ve ’leveled’ out like 8-10 months in side effects coming and going so pretty much the same and then of course mood and those things can add the ups and downs.
Then to be fair I’m also having my ’penile rehab’ regularly with my PDI5 inhibitors, my penile pump and also a penimaster. So, regular excercise of all sorts helps out and helps me going down the path way ✌️😁
A big congratulations. Keep the course and continue enjoying your life.
Right on ulfhg - wonderful news. Thanks for sharing with us.
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