sickofpm in Myositis UK a year ago
recently been diagnosed. now on 50m steroids. thing is I've taking tablets for 6 weeks and they have made absolutely no difference. I can ba...
What is polymyositis?
misty14 in LUPUS UK 5 years ago
Lupus and polymyositis
Tulipano in LUPUS UK a year ago
Just saw my consultant and on top of Lupus i have muscles autoimmune disease called polymyasosis. Does anyone else have it too? The Dr may ...
Just been diagnosed with polymyositis
gtn301072 in Myositis UK a year ago
Hi need help been working all my life I am a 44 year old male with diabetìc all my life I have just be diagnosed with polymyositis the last ...
Interstitial lung disease and polymyositis
Twinsmum10 in British Lung Foundation 2 months agoPOPULAR
Hi I am new to the forum after reading through a few of your stories I thought I would introduce myself and share mine. I am a 40 year old m...
Polymyositis, scleroderma and Raynaud's
p_syarova in Scleroderma & Raynaud's UK (SRUK) 4 years ago
I am curious to find out if anyone in the UK have managed to attain a Disability Living Allowance? I have Polymyositis, scleroderma and Rayn...
Polymyositis - Information & links
Jo-Goode in Myositis UK 2 years ago
◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy
◾General Guide About Myositis UK
Be the first to reply
Myositis polymyositis help
Have had moosijis for months now the dr said if could have been working for up to 4 or 5 before I new had to give up work but having real tr...
Does anyone have SLE & polymyositis.
Renu in LUPUS UK 6 years ago
Just wondering if anyone has polymyositis and how you are coping with it. I struggle more with this muscle disease I think then SLE?
Does anyone have a polymyositis diagnois?
yorkshiregirl44 in Thyroid UK 5 years ago
Polymyositis Help please share with me thankyou
Pineapple01 in LUPUS UK 2 years agoPOPULAR
I was diagnosed with polymyositis over a year ago now on my 3rd.immu and still muscle wasting and pain my rheumatologist has retired out of ...
Challenges with Polymyositis and possible lung damage scarring
SouthernNIna in Myositis UK 10 months ago
Hello, my dad has been diagnosed with polymyositis and as an affect of the medicines he has been taking his lungs have been damaged with sca...
How long do you stay off work with Scleroderma/Polymyositis?
Irene55 in Scleroderma & Raynaud's UK (SRUK) 7 years ago
I was diagnosed with Scleroderma/Polymyositis overlap last May. I believe it first started in 2008 but I just thought it was fatigue from w...
Is feeling overwhelmed and struggling to cope day to day part of lupus/polymyositis or likely to subside over time?
Hi I have CTD (SLE/polymyositis) and was diagnosed 2 years ago. I have recently joined Lupus UK and am new to this site aswell. I am posit...
Anyone had a polymyocotis diagnosis?
yorkshiregirl44 in LUPUS UK 5 years ago
Myositis UK Afternoon Tea Meetup Manchester 19th May
Jo-Goode in Myositis UK 4 months ago
*** LAST FEW PLACES AVAILABLE ***
Myositis UK Afternoon Tea Meetup - Manchester 19th May
Guest Speakers: Dr Hector Chinoy & Dr Liza McCann ?...
Dermatomyositis - Information & links
VonnieD in Myositis UK 8 months ago
Today I took my first dose of methotrexate and prednisolone. It's taken a little while since being diagnosed with Polymyositis in November ...
aprille2150 in Myositis UK 2 years ago
I would just like to thank you for accepting us onto your new page. I was signed up on Myositis forum. My husband has had polymyositis for a...
Anyone been diagnosed with polymycotis
I realise iv asked this question before but because its rare i didnt have any replies.I thought at different times someone with this conditi...
No Man Land Without a Shield! Any thoughts please
spiceyandsugar in LUPUS UK a year ago
So I saw Dr Griffiths who was lovely & looked like we had pinned my varied symptoms down to polymyositis. Two raised CKs (1350) 4 wks ...
I think I've been diagnosed?!
eescvc in LUPUS UK 6 months ago
Early December 2017 - Went to GP with what I thought was RA symptoms. A number of bloods taken.
Late December - GP refers me to Rheumatology...
Information, links & Myositis specialist clinics
Jo-Goode in Myositis UK a year ago
Information, links & Myositis specialist clinics:
Admin to Myositis UK Healthunlocked - Jo Goode.
Diagnosed in 1994 with Dermatomyositis aged...
Linorandthewolf in Myositis UK 2 years ago
Maybe you guys can help me out, I've already been diagnosed with lupus but for the past little while I've noticed gradual weakness in my upp...
Mebros in LUPUS UK 2 years ago
I have a speckled pattern of 250 what does this mean is this good or bad
Anyone been diagnosed with polymycotis?
ANAs jumping around?
Schnulke in LUPUS UK 6 years ago
my ANA has been 1:2560 in six blood tests. Now the latest showed it to be just 1:640. Is it possible that the ANA can jump around lik...
sunrae in Behcet's Syndrome Society 5 years ago
My sister age 65 has been in the hospital since February 13 with what started out as bleeding from somewhere ? She has Bechet's and diabetes...
Welcome to the new Myositis UK Community Forum!
Welcome to the new Myositis UK community forum!
This forum will replace the old community forum on the Myositis UK website when the su...
Can I get IVIG?
MissFG in Myositis UK 10 months ago
Due to normal CK levels I’m not on steroids and don’t want to go on them either.
But consultants are saying there’s no obvious signs of muscl...
Start a Community