Success! Off of prednisone and Actemra.

[Kentucky5]

Hi. GCA/PMR 8-2017, start 60mg prednisone. 10-2017 started weekly shots of Actemra and started tapering prednisone. Miracle happen Feb. 1,2018... I found this forum! I read the post of others, got educated more on these disease and began to believe “ I can get through this”. And I did. Last prednisone, 11-2018. Tapering off Actemra 7-2019!! I am doing great . I have found my “new normal”. Active ( running and exercising)but not as intense. Happy to be in Club Zero! Thank you to ALL who contributed to this forum!!

[PMRpro Ambassador]

Great - long may it last! Do drop in occasionally!

[Marilyn1959]

Fabulous news Kentucky5. Congrats

[HeronNS]

Well done you. Always great to hear a success story. Keep well!

[Hidden]

👏👏👏👏

[jinasc]

Congrats, just like Gladys, someone who took part in the TCZ trial and 1 year later - into remission and still in remission.

[enan-illuc]

Well done Kentucky5!

Drop in and let us know how you are doing. This is great news.

[Baileyw06]

Congratulations

[Blearyeyed]

Yah!!!!!

So happy for you , and so happy that all the folks on here were a help and support to you in your Mission to Club Zero!!

It's great for us all to here news like this , not just because it gives us all hope for a Pred free future , but also because we can feel we are still contributing to making a real difference in the World by giving others the encouragement and support they need when we often feel restricted from doing much else.

Don't forget , you need to keep pacing yourself for the next six months and resist jumping into the ' Old Habits' too quickly , your body is still trying to get back to being

100% ' Match Fit' and you don't want to push it now and waste all that good work.

Cock-a-hoop the ' New Normal' is working for you , hugs , Aunty B x

[Jackoh]

So pleased for you and great encouragement for everyone. Keep in touch if you can.

[confused2]

I am so happy to hear a success story. Gives me hope that this may one day happen for me as well. Some day I need to just hold on to something like that. So happy for you. Thanks.

[PMRCanada]

Congrats!! I need to hear stories like this among all the posts that focus on medical/symptom woes, to provide hope and remind me that folks DO go into remission....we just don’t hear about it as often.

Thanks for sharing, and I wish you a future free from PMR!

[bunnymom]

Wonderful 💐💐💐!!

[Kentucky5]

Thank you everyone! 😊

[luv2read]

You are my hero!!! I want to be just like you. I am down to 6 mg of prednisone and doing the Actemra every Monday. Can I ask if you had any side effects from the Actemra? My main complaint is tiredness, but there is also other stuff going on, and like everyone, I blame the prednisone but just wondering if some of it could be the Actemra. Congratulations on your renewed health!

[PMRpro Ambassador in reply to luv2read]

One adverse effect of Actemra can be fatigue.

[Lonsdalelass]

Great news!! I'm so happy for you!