Experiences with

Rayos

I've been taking my prednisone at 2 a.m. so it will be fully kicked in by 4 a.m. based on the Rayos delayed release prednisone study and article I read. I found from experimenting that it does seem to be more effective for me when taken like this versus taking it later in the morning.

And (2) the rheumatologist gave me a sample of Rayos (low dose prednisone) to try before my follow up. The horrible stiffness and diffuse pain / achiness is all but gone (yay!!), however I have an INCREASE in specifically painful areas. My knee hurts enough to wake me up at night, etc.

Fast forward I am down to 3 mg of Rayos and Actemra every other week. I feel great and recovered quite quickly because I know how to take care of myself now. I am retired, keep myself very active and rest when I need to.

Rayos/Lodotra coating is designed to release after 4 hours. I THINK this is if taken in the middle of a meal? "The formulation technology of RAYOS/LODOTRA enables a delayed-release of prednisone approximately four hours after administration.

and it reads......Prednisone (RAYOS) normally used to treat inflammatory and allergic conditions. It says that long-term use cause a variety of eye disorders, including cataract, glaucoma, and retina detachment. I have seen my vision get much worse since I started prednisone.

Que hago que no sea rayos ni hormonas. Ya hago dieta. Remedios off label?

Then I switched to Rayos and started growing a thick prickley hair on my chin and less of the fuzzy hair. Now all of a sudden I am growing no hair at all on my face or shoulders. I have alligator skin that is just horrendous looking. Now I also have a bright red left cheek.

My insurance will no longer pay for Rayos. What is the name of an enteric coated prednisone other than Rayos? I can't find one. Thanks

PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue.

Also, Has anyone been on our Rayos, the time released prednisone??? See rheumatologist on Tuesday and thinking about going on. Is very expensive, but checked with insurance and they will pay most of it. Worst is in morning can barely get out of bed or walk, sometimes 5 to 6 hours.

I am on 13mg rayos down from 14mg. in a 5 week period. Now I have to get up at 5am in order to try and be out of the house by 7:30. AAARRRGH

I have been slowly reducing my Rayos and doing pretty good. I am down to 12mg from 15mg from December. 2 nights ago I woke in incredible pain in my hip, knee and leg. I could hardly move. I increased my rayos to 14mg then to 15mg before I got any relief. Last night the same thing happened.

So now he has instructed me to switch to Rayos and take it at night ( I said I would like to take it after my late meal, around 8pm, and he said that would be ok) so as to combat the inflammation and prevent those rough mornings.

They have moved me from Rayos/prednisone to HC because they think I may have adrenal/endocrine issues and can't test foe it yet bc I am on too high of doses. So they are thinking they may be able to get me to lower doses of HC because any time I try to lower on the pred I flare.

I took 2 mg of Rayos and went to bed for about 40 minutes. Does anyone think the rayos could work that fast? When I got up I felt so much better. Still hurt a lot but nothing like the pain that was earlier. I have had flares since having pmr for the past 23 months but nothing like this.

I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they burn almost all the time. I am not diabetic and the foot dr. can't find anything wrong. That just leaves medication as being the problem.

Has anyone been on the above? Was it better for pain relief? Price is $2700 for a month supply but can be supplied to patients for free through a specific source.

I have started taking Rayos and that is giving me mouth sores and my hair is falling out worse than before. So, I was wondering if anyone has any experience with this drug and if it worked for them? Thanks so much for any input. Have the best PMR day possible. Lin

Rayos (Prednisone). I have been on Actemra for 1 year. For 6 weeks I had really blurry vision again, headache, temporal soreness, headaches with some stabbing pain, and numbness tingling throughout my body (Parathesia). My doctor told me you cannot have a flare on Actemra.

Rayos (Prednisone) a night. Thank you for your reply.