Hi All this is my first post to the site though I have been reading posts for a while now. It has been a God send to me after feeling very lonely and at sea garnering the usual info but needed to know what it was like to feel having the symptoms of PMR, were my symptoms the norm or not? It has been a great comfort and source of info for me.
Just had to let you know I will be in need of training my GP after the last visit. All started well when diagnosed and was handed steroids at 20mg, then she wanted to drop after 6 weeks to 15mg then after one month to 15mg/10mg alternative days. Then I had my first flare up. I took an executive decision and went back up to 20mg but seeing her this week asked her if I could go back up to 20mg and she agreed but was not a happy bunny (mind you neither was I) but since I had already been taking them for 10 days or so wasn't that bothered about her input.
Now I come to the best of all during this consultation, she explained that she wanted me off Preds pronto, so, with the help of your in-house training for GP's I said, " I want to come off, you want me to come off but my PMR does NOT want me to come off". So I think to hammer home her "advice" she then said but you do not want to be taking steroids for the rest of your life (Huh) because they will make you FAT and your face will become BLOATED and who would want that. Well that cheered me up no end so went home and had a rant to hubby chucked things about, kissed me dogs, and then decided I would have a big English breakfast - so there GP!!!! I am really sensitive to steroids but in a good way, do not have so much fatigue now, no probs sleeping, just really painful in the mornings and very painful knees. I take my gastric coated Pred/one Co-codamal with cup of tea at 7.30 a.m. and find that they filter into body quicker during the day. Did originally start on uncoated Pred but they did not seem to lock in until 7.00 p.m.that day. Showed her Dead Slow schedule and she was very dismissive, it would "take a long time to come down off them" I thought that was the point.
Keep well all of you out there and take care of yourselves, hope you like my photo of me and my Rottweiler Saffron, she is 10 years old now and is beautiful.
Love to you all