Seem to have lost my last thread in which PMRpro kindly responded and I was to keep her posted.
My ESR has dropped from 16 to 8 within a 3 week time frame on my Hydrocortisone 12 hours slow release acid resistant caps.
Had a B12 injection last week as my bloods indicated level borderline - had certainly put a "tiger in my tank" for a few days and had a totally new lease on life. Hadn't really wanted to eat much for months prior to this and have lost 3/4 stone.
A slight set back over last few days where I needed to tackle a difficult issue with client and noted I got quite stressed, instantly headachy and last 2 days fatigued.
Thought I could have handled the stress better but body told me other wise.
I am slightly annoyed with myself over this because I have been doing everything humanly possible to get as well as I can before our winter sets in as my immunity is low with present blood test which I know is usual in our situation taking steroids.
Am going to make appointment with Vein Specialist this week as lower right leg veins painful and swollen at days end - also still oedema with this ankle and can't wear a shoe comfortably now.
Noted last week when running my fingers through my hair that I have a wee dent (1cm at least as can fit 2 finger tips into it) near the fontanel area - could this be thinning of the skull?
I don't do diary, very little cheese once in a blue moon, but eat nuts, yoghurts, Keifer,plenty of green veg plus pumpkin, carrots, sprouts beets, mushrooms, avocado and have a milky quinoa porridge for breakfast every morning.
I can no longer tolerate black tea for some reason so not adding my almond/coconut milk like I did.
I do make a carob/cocoa drink at night with my almond/coconut milk, but wonder if I am actually getting enough calcium or could this indentation be something else?
Have downloaded your deadslow and stop plan PMRpro to show Rheum. Spec after Easter when I am due for next apptment.
Is this the best as he is considering tapering and I am not in a hurry altho would like to make a start after I have had my leg veins attended to.
Appreciate your thoughts - kind regards to you all once more and