Pelvic Pain Support Network
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I live in the Liverpool area but would like to know if anyone can recommend a really good adhesions specialist that I could be referred to?

It would take me way too long to tell you my story as it started when I was 15 and now I am coming up for 48, have lost my job because of it, and am housebound. I had a hysterectomy at 25 and had the usual endometriosis and chocolate cysts and also severe IBS. I am fed up going from doctor to doctor and seeing the disbelieving look on their face that adhesions cause so much pain. (even though I have been told that my insides are covered in them, and they have pulled all my organs all over the place.) Is there any hospitals or specialists out there that I could get in touch with please? I know there is nothing you can do but I need to speak to someone who understands me. Thanks guys. xxx

4 Replies
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This is a dilemma. Have you seen a pain specialist at all ? The Walton centre is in Liverpool. There is someone there with an interest in pelvic pain.

Otherwise there's a pain specialist in Manchester who has an interest in pelvic pain.

Let us know how you get on

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Thank you for replying. I have been to the Walton Centre years ago, but because I couldnt commit to going there every day for 2 weeks (as I dont know if I can even get out of bed from one day to the next), they wouldnt give me a place on their course. I have had to deal with all of this on my own as very few doctors believe in adhesion pain. I am currently waiting to see a Dr Levshenkov at St Helens Hospital, but I dont yet know if this doc believes in adhesion pain, so I will have to wait and see. (I will know straight away by the look on his face.) I really want to find a doctor or surgeon who can take me on and believe me when I say how painful this all is and how delibitating it is.

Thanks for listening. xxx

Reply

Hello,

Have you read a headache in the pelvis by Dr. David Wise? I'm by no means an expert but I know this book has helped a lot of people. It includes some self treatment also.

I understand what you're going through, there is nothing worse than having people (especially doctors) look at you as if you are a hypochondriac when the reality says otherwise! Probably worse than any afflictions that you have on their own.

I hope your situation eases soon

Good luck

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I can’t believe this was 6 years ago! Nothing has changed but now I am on fentanyl patches and morphine, amongst other meds. Right now, I feel that nothing is helping. Luckily though, I’ve spoken to a dr who must be new, who seems a lot more understanding and we are going through all of my meds, adding and changing them. He doesn’t want to change too much at once though so it will be done over time. I really hope this dr is what he appears to be so wish me luck please as my mood is very low indeed. X

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