I live in the Liverpool area but would like to know if anyone can recommend a really good adhesions specialist that I could be referred to?

It would take me way too long to tell you my story as it started when I was 15 and now I am coming up for 48, have lost my job because of it, and am housebound. I had a hysterectomy at 25 and had the usual endometriosis and chocolate cysts and also severe IBS. I am fed up going from doctor to doctor and seeing the disbelieving look on their face that adhesions cause so much pain. (even though I have been told that my insides are covered in them, and they have pulled all my organs all over the place.) Is there any hospitals or specialists out there that I could get in touch with please? I know there is nothing you can do but I need to speak to someone who understands me. Thanks guys. xxx

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  • This is a dilemma. Have you seen a pain specialist at all ? The Walton centre is in Liverpool. There is someone there with an interest in pelvic pain.

    Otherwise there's a pain specialist in Manchester who has an interest in pelvic pain.

    Let us know how you get on

  • Thank you for replying. I have been to the Walton Centre years ago, but because I couldnt commit to going there every day for 2 weeks (as I dont know if I can even get out of bed from one day to the next), they wouldnt give me a place on their course. I have had to deal with all of this on my own as very few doctors believe in adhesion pain. I am currently waiting to see a Dr Levshenkov at St Helens Hospital, but I dont yet know if this doc believes in adhesion pain, so I will have to wait and see. (I will know straight away by the look on his face.) I really want to find a doctor or surgeon who can take me on and believe me when I say how painful this all is and how delibitating it is.

    Thanks for listening. xxx

  • Hello,

    Have you read a headache in the pelvis by Dr. David Wise? I'm by no means an expert but I know this book has helped a lot of people. It includes some self treatment also.

    I understand what you're going through, there is nothing worse than having people (especially doctors) look at you as if you are a hypochondriac when the reality says otherwise! Probably worse than any afflictions that you have on their own.

    I hope your situation eases soon

    Good luck

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