pudendal nerve decompression surgery

[kate46]

hi, has anyone had surgery for pudendal neuralgia within the UK and can recommend anyone? Thanks in advance.

[VFR1200]

I believe there is no one in the UK who does this surgery, I had mine in France. It can be arranged in the UK though. Contact Dr Greenslade at Bristol Pain Clinic to check need and eligibility.

[Rosielover in reply to VFR1200]

you had yours in France? Was that Nantes? Did it work for you? My sister had the surgery in September. Did it take six months before you noticed any improvement? My sister is still struggling with the pain. Thank you

[VFR1200 in reply to Rosielover]

Yes, surgery was in Nantes, I do not have a complete recovery, but what I do have is very little pain compared to before. I still don't sit down well, this will cause pain, but apart from this, I can do everything else fine. I would rate it a success.

[Rosielover in reply to VFR1200]

Thanks for your reply and all the best in your recovery!

[Konagirl60]

I had a triple crush pudendal nerve compression injury. My anus and rectum were on 🔥 fire and they felt electrocuted. I couldn’t sit. I couldn’t sleep.

I got no help in Vancouver where I live. My GP and nine specialists brushed me off. I had no voice. They all thought I was being dramatic and that I just wanted attention ( NOT ). I was a mature 51 year old professional.

My medical treatment was abusive, incompetent and negligent. I needed stat pudendal nerve blocks done trans-gluteal…my pain specialist injected my vagina and labia…..to no avail.

I was diagnosed with vulvodynia and bi-polar disorder. It was nonsense. All the doctor’s would do was ‘medication management’ after my failed nerve blocks. No pill helped me at all. Eventually, I lost cognitive function and was left to die in agony.

Divine intervention in late 2010 had me meet a registered nurse consultant. I hired and paid her to procure my decompression surgery. I’d had doctors tell me they’d procure my surgery and they did NOTHING. 😭

I had the surgery four years too late in 2011. Its 2024 and I’m finally able to sit for up to an hour but I’ll always sit in a firm foam sponge toilet seat. I’m not losing whole bowel movements anymore and I’ve weaned off of all day time meds. I not use two meds at bedtime.

Good luck. The sooner you get treatments the better for your nervous system. Keep me posted.