Pudendal Neuralgia Physiotherapist

[Tuscan_Sunflower]

Hi All,

I joined this forum today inspired by a book by Margaret Stubbs. I have received my formal diagnosis of Pudenda Nerve Entrapment in July this year but I was relatively sure this was going to be the final response since the symptoms first appeared in February.

I am not using medications currently as the first experience with Amitriptyline was a disaster due to severe constipation. I am currently waiting for my first nerve block to be arranged, but I am not optimistic this will result in a long term solution for me.

I have found that gentle Yoga had some benefits and I am keen on finding a professional Physiotherapist who specializes in Pudendal Neuralgia as I expect similar or greatest benefits to come from this.

Does the forum have any suggestion for Physiotherapists in the London area?

Many thanks!

[edythe]

Hi Tuscan—Sunflower,

Sorry to hear about your pain. Your idea to find a PT could be really helpful. We’re not supposed to mention specific names in our posts/responses, but I replied to claud 89 three years ago and named 2 PTs in London, one of whom I went to and was impressed. So either look and see what comes up with my name or claud 89 or use the search function ( physiotherapist in London). I hope this helps.

[Midori83]

Hi! I have genitofemoral neuralgia and the nerve block has worked (I have more to do for the other 2 inguinal nerves). My pain management doctor explained that there is a kore long term solution, after the diagnosis with the nerve block. And that is pulsed radiofrequency.

[Tuscan_Sunflower in reply to Midori83]

Thanks, I have read recently about this and I was disappointed it was not mentioned by my specialist as an option. Something I will push him to further investigate for my case.

[Midori83 in reply to Tuscan_Sunflower]

Great! Do that asap, as I have just been told that the waiting lists on the NHS are months long! I have been on the waiting list since 1st August, and they are fully booked until February 2025...Best of luck with the treatment and the physio! 💚🙏

[Cookie24 in reply to Midori83]

How was genitofemoral neuralgia and inguinal neuralgia diagnosed? My pelvic pain specialist diagnosed iliolinguinal and iliohypogastric neuralgia. I had a series if 5 nerve blocks for the iliolinguinal nerves. I take Gabapentin. What was the medication in the nerve blocks you had?

[RobertVerde]

Here is a website that can help find a PT: pudendalhope.info/list-of-p... - Good luck!