My entire history is in my profile, I suffer syntoms referred to pudendal neuralgia: chronic pelvic contracture often with burning character, uretral urinational burning and heavy sexual problems like anorgasmia.
I travelled in Italy in this 12 years to find a solution without results, I tried physical therapy, oral drugs, infiltrations, neuromodulation (at S3 and Alcock canal).
Recently I was in visit to Dr. Marc Possover in Zurigo that exluded peripheral nerve problems but wasn't able to help me too.
I have done many neurophysiological tests (last on 2016 that show some alteration in pudendal nerve conduction) and RM-neurography (showing only small asymmetria in pudendal nerve at Alcock canal and L5-S1 hernia with epidural fat obliteration).
I'm very afraid and depressed because syntoms worsened this year and I feel I have no chance to hope for a decent life.
I want to investigate more and contacted Rajeshree Nundall de Bisschop (Aubagne clinic, France), pudendal nerve entrapment specialist with her husband (dr. Eric de Bisschop). She told me that only way to have an accurate diagnosis is "Staged sacral reflex + pelvic ultrasounds".
Here the "Staged reflex" article: pelviperineology.org/march_...
Eric de Bishop also found a link to L5-S1 hernia and pudendal syntoms in some studies (possibility of intraspinal compression):
What do you think about this situations?
Someone have some experience with dr. De Bisschop or other big specialists about difficult diagnoses cases of pudendal neuralgia?