adhesions from infection

[Nature71]

Hi please can I ask has anyone has it confirmed that their surgical adhesions were caused by an infection after their surgery.

I had open myomectomy to remove fibroids and then got diagnosed with scar adhesions, endometriosis, adenomyosis and now pyosalphinx. The pyosalpinx cannot be an STD so I’m assuming that t was caused by an mfr toon after surgery. I had issues from 6 weeks

[Better_1]

Hi,

Adhesions can definitely be caused by infection. Have you got the report of the fibroid surgery as this may shed light on whether adhesions were already present before the surgery ?

How were the other conditions diagnosed subsequently ?

[Nature71 in reply to Better_1]

H thank you for your reply. After experiencing lots of pain and no support from my gynaecologist who did the surgery, I requested all my notes. My pelvis was mobile with no mention of any issues other than 6/7 fibroids when I had an mri two weeks before surgery. However the mri never picked up adenomyosis or endometriosis but the adeno & scar adhesions were picked up in Feb on ultrasound scan. The surgery didn’t cause part of the adeno as I had an adenoyoma. However I am waiting to find out if I have diffuse adenomyosis. The pyosalpinx was picked up last week on transvaginal 20 months after my surgery. My CRP blood s was 119 3 days post op which I wonder indicated there was an infection

[Better_1 in reply to Nature71]

Do you know whether it was a specialist radiologist in gyne conditions who read the orginal MRI scan ? Fibroids and Adenomyosis can be confused. Have you got the images and the report as you can request a second opinion ?

Was this NHS/private or a mix of both ?

[Nature71 in reply to Better_1]

No it wasn’t a gynae specialist. I knot realised this after doing research that to find certain conditions they need to have extra training and put in specific protocols. To be honest I’m in the process of putting a complaint in and will be asking to be referred to a different trust. However I do need to get treatment for the pyosalphinx. I may get a private ultrasound at a specialised centre

[Better_1 in reply to Nature71]

I'm sure most people don't realize the training that's needed in this field.

Have antibiotics helped at all ?

I've got personal experience of what you describe but mine started with deep endometriosis, adhesions, subsequent infection, remaining fallopian tube not patent, fibroids, adenomyosis so I know what you're talking about.

I hope you get the pyosalpinx sorted

[Nature71 in reply to Better_1]

Oh gosh I’m sorry you’ve been through this too. I had no idea I had any of the conditions other than fibroids until the scan in Feb 24 had this one last week that showed pyosalpinx. So can I ask what caused your infection? I’ve read deep endo can cause it which makes sense if tissue becomes infected in the tube. I only had scan Friday so waiting due phone call back from GP as I’m keen to start antibiotics quickly. Sepsis scares me and with all my recent interactions with the NHS I’m not feeling that confident. Can you explain your story if you don’t mind

[Better_1]

It's a very long story. Endometriosis was in several locations including remaining ovary, appendix, rectovaginal nodules. Extensive infection quite a long time after surgery resulting in further surgeries, appendix removal .....

[Nature71 in reply to Better_1]

It’s sounds like a very long and painful process emotionally and physically. How are you now?

[Better_1]

Still have constant pain especially standing and sitting but it's usually not off the scale like it was. Am able to function which wasn't the case for many years.