Confused and Despairing

[CecilyParsley]

Hi everyone. I really hope that your own pain is eased currently. I am despairing after seeing at long last an NHS Pain Management Consultant today.

Background Info, apologies for the lengthy post.

I have several sources of pain from Bechets , query Lupus, Osteoarthritis, Musculsr Skeletal, pelvic and new new source which is causing me to scream. I do nit know the cause, two GP`s have refused to examine me, my Rheumatologist is nit responding in spite of six calls to the helpline and four emails to him from the Rheumatology Specialist Nurse. I am struggling to weight bare, bend or stretch my left leg since my nasal surgery and the severity of the pain is stopping me sleeping and I am having to literally drag my leg. I self referred to the Musculsr Skeletal Team and they refused to touch me in case I had a blood clot. I arranged for a Doppler,er scan with my podiatrist and although she found adequate blood flow to my ankle and femoral artery the painful leg had a weaker flow so she has asked my GP to organise vascular screening. I will not hold my breath.

I had been seeing a private Anaesthetic Consultant of repute who had tried several drugs for my pelvic pain which she diagnosed as PN. She was hoping to get my pain under control so that Sge could then do the nerve blockers.Unfortunately I ran out of money and then after a whole year the NHS pain clinic appointment arrived.

So today I thought at last I would get relief from some of my pain coukd be dealt with. The Consultant however had other ideas. Sge told ne because I had the hot poker pain at night it was not PN or Vulvodynia and therefore she could not treat it . She has referred me to a psychologist. To my horror I started to cry silently as she was talking and I coukd nit stop. She totally dismissed the private doctors diagnosis and claims she has national and international acclaim and is more highly qualified. She point blank refused any pain medication despite seeing that I was struggling to stand up and in agony. she examined my vagina on a bed without a screen or blanket. I felt exposed and embarresed. My friend had to take my incontinence pad off me as I was unable to bend my leg to retrieve it. She told me I would need a seperate referral for each type of pain so one for my Osteoarthritis, one for the muscular skeletal pain, one for my Betchers pain, one for my back pain, one for my foot pain, one for my neuropathic pain.

I waited six years for a Doctor to diagnose the red hot poker in my vagina pain and in an hour today it was taken away along with any hope of help.

Had anyone here experienced PN at night please?

Thank you if you got this far