Vulvodinya : Hi can I have some advice... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,661 members • 5,753 posts

Vulvodinya

Black_Cat1 profile image
Black_Cat1
•7 Replies

Hi can I have some advice and help please, I have Vulvodinya and I have tried all sorts.

Is there anything out there that I could be missing.

Thank you 🙏

Written by
Black_Cat1 profile image
Black_Cat1
To view profiles and participate in discussions please or .
7 Replies
•
rubine7521 profile image
rubine7521

I was given gabapentin cream for the external area, twas helpful ish but u may get on well with it x

MissStar profile image
MissStar

You could try raw local honey mixed with coconut oil (food grade type) - place small amount in vagina daily (at night, use a cloth pad if you find it messy) and that should help the microbiome of your vagina and thereby help restore good health all round your vaginal/vulval area. Good luck, wishing you healing

Black_Cat1 profile image
Black_Cat1 in reply to MissStar

Thank you so much 🙏

Perry1270 profile image
Perry1270

I have had it for 6 years…Been to a number of different Doctors. I have had steroid injections, and now I am on vaginal suppositories. They have 2% diazepam. They seem to help.

Black_Cat1 profile image
Black_Cat1 in reply to Perry1270

Thank you so much 🙏

Y04g8Evr65 profile image
Y04g8Evr65

I tried many treatments: bioi-dentical hormones, biofeedback, internal myofascial therapy, but what seemed to work for me was working with relaxing and then strengthening my pelvic floor.

cdonn50 profile image
cdonn50

Hi black cat I've had the same for y years. I've tried gabaperntin amatriptilyn tramadol so many I can't recall them all.. the only place that successfully treats this condition is in Nantes France. If you want to research it and want a companion just call me Christine 07939900258

Not what you're looking for?

You may also like...

Hi. Following recent surgery for prolapse I have been diagnosed with pudendal neuralgia and feel so alone as this is such a rare condition.

I have very quickly changed from being a fit and healthy 52 year old woman to being a chronic pain...

Chronic pelvic pain

Need a bit of support and to see if there were others out there. I have had five operations,...

May be of interest

My partner feels I may benefit from a better cushion to sit on when I do have to sit, so been...

Is there any charitable organization to help me?

I suffer pudendal nerve entrapment for fifteen years and I have been told the only solution is to...

Help, anyone had Pelvic Inflammatory Disease?

I was diagnised with PID in December 2015 and it's been hell for me. I have chronic pelvic pain...