I have chronic pain (which I have had for the last 9 years) in the top of my left buttock.
I have seen numerous doctors,been referred to 6 pain clinics,had pulsed radio frequency and epidurals.
6 MRI scans,CT scans,Ultrasounds and heaps of other tests,all of which come back normal.
Hence one of my GPs has told me that he doesn't think there is anything wrong and another told me to go home and drink the red and white stuff! I asked a 3rd GP to refer me to a top london hospital which he did. After further tests the Drs thought I might have a trapped cluneal nerve.At last a diagnosis. I was over the moon.I was then referred to the 'expert' who recommended a nerve block,but told me very bluntly that 'i might have to live with this pain like I would have to live with a leg being amputated.I was distraught,after finding a diagnosis to be told there was nothing that could be done.
MY question is: Has anyone out there been diagnosed with a cluneal nerve entrapment and if so who did they see and have they found any nmedication that can help with this kind of pain.
Has anyone had the cluneal nerve decompressed and if so at which hospital.
I really would be grateful for any feedback