Pain that worsens upon movement? And triggers longer episodes of pelvic pain if I’ve been lifting or especially walking anywhere.

[Mumof2teenagers]

So, just over 3 years ago, I had a tubo-ovarian abscess, which I was in hospital for around a week with… It’s likely that this may have been caused by the coil itself and a consequent infection. Managed conservatively at the time but after repeated infections and severe pain, I was finally offered surgery and had an salpingectomy around 18 months ago. Recovery was long as I had open surgery; due to weight gain whilst inactive keyhole could not be performed.

Under pain management, I’ve tried TENS, acupuncture, physio and gabapentin. I’m speaking to my consultant next week but my pain has become more intermittent, as I’ve had 8 weeks off work.

Diagnosed with mild prolapse, cystocele and rectocele. Also IBS. However, a recent ultrasound didn’t show anything significant or new. My pain tends to flare up after walking or increased activity, for example mowing the lawn. Periods are very uncommon now as I no longer have Fallopian tubes. However, during April and May, I had 3 separate occasions when I experienced pain and blood upon wiping, for approximately 4-5 days. Which also seemed to be after increased activity, possibly?

Any ideas what is causing these symptoms of both pelvic pain and occasional episodes of bleeding? Could it be nerve damage? And would that be intermittent/caused by certain movements? Surgeon informed me that there was no significant scarring from c-section or any endometriosis when she performed the salpingectomy.

[totoyaya]

Hi sorry to here about your painful problems, I have been on gabapentine for 16yrs now and it does help me , if your in a lot pain I would give them a try

[Mumof2teenagers in reply to totoyaya]

Thank you, totoyaya, I’ve tried the gabapentin but really didn’t feel any great improvement. Really glad it helps you though! 😊

[Konagirl60]

I hope it’s not your pudendal nerve.

Do you feel you have nerve pain? Do you feel electrocuted? Do you have pins and needles sensations? Does it burn anywhere?

Are you losing urine or stool? Can you sit pain free? Can you sleep pain free?

Finally, are you sure there is no fibroid(s) seen on any scans or during your your recent surgery?

Until you find out you might want to avoid lifting anything too heavy. You can also get a arm extender at a medical supply shop to help you pick up stuff off the floor or in your garden. ( to prevent hip flexion activity )

[Mumof2teenagers in reply to Konagirl60]

Hi Konagirl60, Thank you for your kind thoughts! It’s not the electrical type pain that I would associate with nerve pain. Although, I have had a few episodes of that in the past. For me, it’s rarely lasted more than half an hour or so, thankfully. Fibroids could be a possibility as I was noted to have those previously. Although nothing was mentioned on my most recent scan 🤔🤷🏻‍♀️I’ve read up on fibroids and it seems to suggest it’s unlikely to be painful or even noticeable.??

[CharlyK]

Sounds like it is really affecting your life. I don't have a solution but for me it sounds a lot like, you might have to consider the muscles around the pelvis or even the influence of the whole body since you feel it mostly after being active. I am new to the forum, so not sure if I am allowed to post a link. But my friend took an online course on on restoring pelvic mobility using other muscles than the pelvic floor and that she said it helped her a lot with her pelvic pain. It was called "unlock your pelvis"

[Mumof2teenagers in reply to CharlyK]

Thank you CharlyK, It really does affect many areas of my life, physically and mentally. I really feel for everyone that struggles daily to get on with normal life, for whatever the reason.

I’ve been under pain management for around 2 years now. I’ve tried various treatments and I have found the physiotherapist seems to be the only person who either understands or helps me. Unfortunately she’s on leave at the moment. When I spoke to the consultant this week, he’s referred me to another waiting list for an 8 week course on pain self-management. So, I’m guessing that I’m on my own after that!?

[CharlyK in reply to Mumof2teenagers]

I am only seeing this now. I wish that you find help quickly. Since my friend convinced me to do the online course I mentioned as well, I have started it. And have to say that it is a very interesting approach. I have felt differences after only 3 sessions. Maybe have a look at it. The facilitator even offered me a 1:1 call which wasn't even described in the program. Her name is Dr. Mareike Engel. She is German but her English is really good.

[Buuldog]

Nerve damage is rare however most pelvic pain is the result of the muscles contracting around the nerves. Unfortunately, this is a difficult condition to treat and not one that the NHS has the expertise to deal with. I have suffered with this for many years and am still looking for a solution. The only thing that I can offer is to save you the years of NHS waiting lists by giving you this information, by all means, go down the NHS referral system but also look elsewhere for a solution.

[Mumof2teenagers in reply to Buuldog]

Do you think that your symptoms sound similar? My pain can vary between fairly mild and tolerable to tenderness, cramps and ‘period pain’ to very severe pain, in agony and barely able to walk. I’m only 43 and it can seriously affect my mobility, it’s quite depressing some days. Thank you for your kind advice, I’d be interested to know more about your pain and situation? And if you do find anything helps? I’ve just been taking painkillers regularly and trying to lose weight to see if that may help.

[Buuldog in reply to Mumof2teenagers]

My condition started 30 years ago it was very bad for about 5 years and then gradually improved, Unfortunatly 3 years ago the pain moved into the groin and pubic bone area, this is where the worse symptoms are. This level of pain is much as you describe and prevents me from walking, I have no explanation as to why the pain spread other than to say that the muscles have contracted further !! Over the years I have made several attempts to get help through the NHS and even went to a clinic at the UCL in London who are supposed to know something about this, all of my attempts have been to a dead end. This is why I advised you not to put all of your eggs in the NHS basket, the waiting times for the NHS will mean that you could wait years before finding that they have nothing to offer as I have found.