Confused after ultrasound results

[Mindfullness4791]

I am 48 and I have had crohnic pelvic pain for 18 months but have had painful periods and left hand side pain for 20 years. Every uss I have had has come back clear.I had an uss a year ago that came back clear. I saw a nhs gynae in October who said she could feel Fibroids pressing against my bladder and bowel and put me on Prostap for 6 months. For 2 months my symptoms disappeared. They added in hrt and my symptoms flared up so badly that I was off of work for 5 weeks. My gp wasn't convinced it was fibroids as I was having classic Endometriosis symptoms - pelvic pain, bleeding from the rectum, urinary incontinence, constipation, pains down my legs, bloating, painful sex. All very debilitating. Morphine didn't touch the pain.

I then saw a private specialist who said that he didn't agree with the nhs gynae as my scans were clear and I would need a Laparoscopy as Fibroids wouldn't cause those synpoms.

As you can imagine, I was so confused and my gp agreed that I needed further scans.

I had my ultrasound yesterday and they found a Fibroid, the size of a large orange, at the top of my uterus. Pressing against my bladder! She said the previous ultrasound missed it, as they didn't scan the top of the uterus. She said (her words, not mine) that the only way to tell if I have endo, is if I have a Laparoscopy. I have been expedited for this.

Has anyone experienced anything similar. I am just so confused now. Is it the Fibroid causing all of this and do I need a Laparoscopy after all?

Thank you if you got this far 💕

[bantam12]

Rectal bleeding doesn’t really fit in with fibroid symptoms but all the others could well be, go for whatever tests and procedures they advise.

[Mindfullness4791 in reply to bantam12]

Thank you. I just feel so let down by the system. It's hard to know who to believe 😪

[MyStar86 in reply to Mindfullness4791]

endometriosis can cause rectal bleeding especially if you have it on the outside of the rectum pounch of Douglas or bowel so please do have the laparoscopy it will help your pain issues so it’s well worth it in my eyes.

[Mindfullness4791 in reply to MyStar86]

That's what I've been told and that's why I'm still worried it is Endo. It's the guessing game that's the hardest 😪

[MyStar86 in reply to Mindfullness4791]

please don’t be worried that it is endo because having a diagnosis of endo is better than suffering in pain and not knowing why and being fobbed off by doctors. This way it will definitively prove if you have endo of not and during the surgery they will be able to remove it and if it is deeper infiltrated endo you can see another specialist who can also removed it. I am 36 had symptoms for many years and was ignored but went private and I was diagnosed very quickly via lap and had two surgeries to remove it and then a total hysterectomy last year but don’t worry not everyone needs a hysterectomy however it’s better to know and treat it than suffer and leave it to get worse without and help xx

[MyStar86]

yes definitely have the laparoscopy because one they can remove the fibroid and two it’s the only way to tell if it’s endometriosis and they will be able to remove it during surgery. It sounds like endo if prostrap helped but the hrt made your symptoms worse as endo is driven by oestrogen. I had all clear scans and tears but the laparoscopy showed wide spread endometriosis I had some removed in initsl laparoscopy but then had to go to another endometriosis specialist as I had endo on the bowel which needed a specialist bowel surgeon so please do have the laparoscopy it’s well worth it to solve your pain issues.

Good luck

[Mindfullness4791 in reply to MyStar86]

Thank you. I'm not sure what it is and I guess without the laparoscopy I'm not going to know. I've had the left hand pain before periods and ovulation for 29 years but the scans have always been clear.

[CockeyMoor]

It sounds like more than one thing is causing the issues and clouding the medical judgement. Have you had a colonoscopy? Just think you have signs of Diverticular disease with the left sided pain , pelvic pain, constipation and rectal bleeding. Diverticular disease also increases pressure in the abdomen and causes bloating . Sometimes severe constipation in the bowel presses on the lumbar 3 disc causing pains down the legs. Also the pressure from the full bowel presses on the bladder and can cause urinary stress incontinence .. On top of that the Fibroid has been found now which will be adding to the bladder issues. Endometriosis doesn’t seem to fit and I wonder if you actually do need to put yourself through a laparoscopy.

[Mindfullness4791 in reply to CockeyMoor]

I initially thought it was bowel. I have had rectal bleeding for years and 5 years ago a sigmoid was normal. I've also had 2 fit tests. I just don't know what to think anymore. Without being dramatic, I am exhausted with it all and it scares me how many different opinions I have had.

[Konagirl60]

Have the laparoscopy. The surgeon can cauterize the endo that’s find and hopefully remove the fibroid. Best of luck.

[Mindfullness4791 in reply to Konagirl60]

Thank you 🙏

[Rocky68]

it certainly sounds like endometriosis. Years ago I had a laparoscopy done to see if I had endometriosis and it came back clear. I continued to have such sharp pain in my right side and really heavy bleeding. I decided to have a partial hysterectomy. When the doctor woke me, he said that I certainly did have endometriosis and they had to scrape it from my rectum. By the time I had a hysterectomy, I was not going to have any more children as I already had two. Rocky68

[Mindfullness4791 in reply to Rocky68]

Thank you for sharing. I think the Laparoscopy will hopefully give me some answers, once and fir all 🙏

[Dondonsm23]

I have chronic pelvic pain for years now in which only started when I found out I have fibroids but the amount of doctors & gyny that have told me fibroids don't cause pain only when they are degenerating 😬 I could scream I still got fibroids I have had all the tests & laparoscopy no endo &all.okI get bad pains right down my legs when the pelvic pain starts again doctors think ccp pain does not cause pain right down ur legs they do not want to listen to patients as they are always right textbook thing

They are all confusing so much its all effected my mental health left in limbo have been for years

[Mindfullness4791 in reply to Dondonsm23]

That is awful. How can they deny the pain you are in? Have they not offered any medical intervention at all to help?

[Dondonsm23 in reply to Mindfullness4791]

Hi no no medical intervention with chronic pelvic pain they don't know what is causing it were it's coming from but they are sure it is not fibroids I did get offered a few yrs ago an hysterectomy on the dy of the surgery in the hospital my gynecologist told me surgery might not help it may not work for me as they do not know were the pain is coming from etc so this us on going

Thanks for your reply

[Mindfullness4791]

I hope you get some answers soon. Take care x