I have seen a lot of posts for vulvodynia, but I what I have not seen is anything for vestibular papillomatosis. Has anyone else even heard of this? Or been diagnosed?
It is a subset of the vulvodynia classification. Apparently it is a common morphology of the vulva, and only rarely presents as infected or irritated. (Which is most likely bullshit because most of science is still studied by men who don't know shit about vulvar pain).
I've experienced general itching and raw-like pain in the skin around my vulvar and anal areas. There is also a ring of small finger-like projections around the entrance of my vulva that's hurts feels incredibly raw when I have penetrative sex. The best way I can describe it is as skin that doesn't stretch, no matter how wet or lubed I am. It's like my hymen has reformed and shrunk.
For a long time I thought it was a yeast infection because of how itchy I was. Then I thought it was BV because none of the antifungals were working. Then the antibiotics and creams didn't work either. Now I am starting to wonder if I have had this my whole life and am now just currently experiencing the worst flare up.
It's been 9 months of this and I've gone through so many tubes of cortisone and lidocaine. I'm finally taking action and finding a specialist. I guess I just wanted to see if there is anyone else out there who feels as hopeless as I do about ever having glorious wet and pain free sex ever again.