just want some advice…

[Sa19944991]

Hi, not really sure what I’m wanting or expecting here, just want some advice or to hear from someone who’s been through a similar situation. This all started following a colposcopy and punch biopsy of my cervix due to abnormal cells in November 2022. Within a couple of days I was in a lot of pain and was diagnosed with a UTI and severe thrush which I treated. I was still in pain after this so had vaginal swabs and had some sort of bacteria vaginosis. Again, treated this twice and nothing was found on 3rd follow up swabs. I have tested negative for all STI’s, and my boyfriend also tested for everything to ensure we were both safe, negative. I’ve had further UTI tests which were negative.

I have discomfort around my pelvis and vulval area daily, with urinary symptoms. I did pee a lot before all this but not with pain. Now I have a near constant pressure on a good day, on a bad day this becomes painful and everything ‘down there’ feels raw. I’m comfortable ish when laid or sitting down, sometimes standing and walking is fine, other times I feel a lot of pressure around my pelvis and urethra when I walk. Sometimes I feel almost an itch or spasm feeling in my vagina itself as well though again there’s nothing visibly or biologically causing it. My periods and ovulation pain also got substantially worse so I started the mini pill and my first period on it was a lot better, lighter and whilst I had cramps they weren’t as bad as my past couple. I do still manage to have a good sex life, it doesn’t hurt during though sometimes increases things a day or two after, though normally not to an unbearable level. I’ve also had a vaginal ultrasound scan and numerous pelvic examinations which found no abnormalities. I’ve been told these issues wouldn’t be due to the procedure I had even though it’s been ever since and not before, so I’m doubtful of that. I’m awaiting a referral to a urogynaecologist though not sure how long this is gonna take, and I’ve booked myself privately to see a pelvic physiotherapist this weekend to see if they can help with the pain management. I’m just at a loss with no answers and no idea what’s happening, I’m frustrated and annoyed. I was signed off work for 6 weeks with it at one point, I’ve been back a couple of weeks now and although I’ve mentally improved from being back it is hard sometimes when I’m having a bad day like today. Even laid down I can feel pressure around my vagina and urethra. Does anyone else have any experience of anything similar happening?

[kalecolbe12]

Yes the pelvic floor therapist will help a lot I had something very similar and it could be vulvadynia along with pelvic floor dysfunction. The surgery probably sent the muscles and nerves into spasm.... I found muscle relaxers help too and you can get them made at a compounding pharmacy which the urogynecologist will prescribe and they can be made as suppository too. The pelvic floor physical therapist will show you exercises stretches and breathing techniques to help also....

[Konagirl60 in reply to kalecolbe12]

Just curious? What was in your suppositories?

[kalecolbe12 in reply to Konagirl60]

I still I still have some there lidocaine baclofen and Gabapentin

[MOLLYMILO007]

I don't suppose they have mentioned a bladder prolapse or cysocel as that can cause pressure etc although with all your tests I'm.sure they would have noticed that x

[SouthernSally]

Are you drinking lots of water? That could help with the raw feeling. Until you can see the urogynecologist or physio, perhaps take a look at YouTube videos for diaphragmatic breathing for the pelvis. You'll find some posted from pelvic physios. I wouldn't do any of their other exercises because some of those can worsen your conditions. But the breathing can only help, even if it just calms your system a bit. You can also find meditations for the pelvic floor.

[pizon]

yes I have had very good results with a pelvic floor therapist….if you can find a peliv pain Dr. That is helped me the most I had a bladder lift and cause my pundel nerve to be compressed now years after my pelvic floor therapy I do yoga daily as well as meditation..get the book titled “Healing Pelvic Pain” by Amy Stein ….I also have had pelvic floor muscle spasms in the past in which I take Valium for only on an as needed basis I found the suppository’s didn’t work as well for me…your pain sounds very much like what my spasms felt like…good luck