Not sure where to start. On and off my whole life I have had pelvic pain of various kinds - bladder pain, urethral pain, vaginal pain and general pain in the pelvis. I have flare ups but am in the middle of the worst one ever.
About 3 weeks ago I developed UTI symptoms but two courses of antibiotics later and two clear cultures laters I am only worse. The pain is intermittent, I had a few good days last week but then on Thursday it hit out of the blue. I think I sometimes have some leakage too, but I don't feel it happen. Basically I feel like someone is injecting my bladder through the urethra, and injecting it with boiling water. My GP is referring me to a physio for an assessment prior to a urology consult. This will take months of course.
Ice packs help as do heat packs sometimes, ibuprofen and paracetamol together will help on a good day. I visit the loo a lot and the pain is relieved while i go, but returns moments later.
Last night was awful. I was up all night in agonising pain wondering what can come of this and not wanting to live with it anymore. I'm becoming socially isolated because I can't travel far as the vibrations from the car or train hurt my bladder.
I guess I'm looking for some light at the end of the tunnel about how I can cope with this and find a way forward.