rectonal pain : I have levitor ani... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,411 members5,659 posts

rectonal pain

Halidon profile image
3 Replies

I have levitor ani syndrome which is a very painful rectom am in so much pain please do help does anyone else suffer from this condition 🙏

Written by
Halidon profile image
Halidon
To view profiles and participate in discussions please or .
3 Replies
rugby13 profile image
rugby13

I've had levator syndrome for a long time had a sacral nerve implant put in doesn't cure but it helps

Skye22 profile image
Skye22

Yeah I was diagnosed 6yrs ago and it is a very painful difficult condition I also have a rectocele and slow transit colon which makes having a normal bowel motion very difficult for me.I have to use transanal irrigation and manual extraction daily, took me a long time to manage this but now it is part of my morning routine.

What really helps me is seeing a bowel/bladder specialist physio. I get internal/external vaginal trigger point Therapy which helps a lot . It doesn't eradicate pain but helps with painful muscle spasms and allows me to sit more comfortably for short periods.

I also see a urogynecologist who gives me Botox injections into pelvic floor. Usually every 3mths. It really helps to ease painful spasms.

It did take me quite a long time to get a treatment and combination of meds that help but I can now enjoy more activities.

Hope you find a treatment that works well for you.

kalecolbe12 profile image
kalecolbe12

I will be 69 in April and I've had this condition for 3 years and at first I thought it might be hormone related... But I also had a car accident I thought that might be it and then I realized that I had constipation problems a long time so I don't know what it's caused by but 3 years ago I started having stabbing pain and burning in the rectal area so mine is mainly rectal and I was diagnosed with Levator Ani buy a colorectal doctor and also after I went to pelvic floor physical therapy which I recommend she said it was levator Ani too however there might be some Pudental nerve involvement. I think it takes a lot of modalities for to manage this but it can be a lot better once you figure out how to manage it .I went to pelvic floor physical therapy for a year and that helped... I took muscle relaxers if I needed them and that helped.. I did stretching and breathing exercises which the PT had showed me and I still do them to this day three times a week... I sit on a tennis ball which relaxes the muscles down there if I need it... I took as much stress out of my life as I could and that meant people that stressed me out too... I'm starting to meditate now and through all of this I had much less spasms and issues however I had some residual burning which I have now managed with a low dose nerve pain medication. This all helps and plus I have a cushion that is a memory gel foam cushion which I sit on and I never sit without it .....it has a hole cut out where the rectal tailbone area is. You can get them on Amazon and it's well worth it although most of them are only around $30... As I say this is all helping me where I can have more of a normal life now but some people they need more like a nerve stimulator to cut the pain signals and there are multitude of things that will help so don't be afraid and don't give up just start with a pelvic floor PT and go from there and you might need a pain clinic too which I have a pain specialist now but as I say I just take a low dose nerve medication which helps pain/ anxiety

You may also like...

Pelvic pain and groin pain

thinks my pelvic is twisted sick of the pain, initially the pain was deep in my groins too but it...

Pain

Does any one know why I have pelvic pain 7 days before a period then when I come on the pain goes...

Foot pain - pelvic pain connection

Hi all. In addition to pelvic pain I have developed severe foot pain which has forced me to resign...

Is your pain constant?

about pelvic pain, where excually is your pain and is it constant 24/7 and also do you have pain...

Stopping amitriptyline for pelvic pain and pain comes back

these pain are not related to botox but is related to stopping amitriptyline. Has anyone had pain...