Pain management: I'm so confused right... - Pelvic Pain Suppo...

Pelvic Pain Support Network

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Pain management

Mobay1 profile image
10 Replies

I'm so confused right now recently diagnosed with pudendal neuralgia after six months of chronic left sided vulva, groin, hip & leg pain many invasive tests they say PN is the cause. They believe this is a result of historical back problems.

Interested to find out what treatments have been effective for you. My first thoughts are alternative treatments such as massage and acupuncture.

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Mobay1 profile image
Mobay1
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10 Replies

How were you diagnosed ?

Mobay1 profile image
Mobay1 in reply to

I have had a transvaginal scan & pelvic & lumbar MRI & a sigmoidoscopy many swabs. As these tests showed no abnormalities x2 NHS Gynecologists & 1 Private came to this conclusion. However I do not agree with there diagnosis.

susieqblue profile image
susieqblue

Mine is right side groin pain, buttocks severe nerve pain. nerve pain going down both front and rear of my right leg. Bowel pain really bad if I need to push.

Mobay1 profile image
Mobay1 in reply tosusieqblue

So sad to hear that.

susieqblue profile image
susieqblue

I am having 6 nerve blocks back to back then endo surgery on 6 injection. so far going well. I am being admitted every friday in the hospital being put under.

MOSAMBIQUE profile image
MOSAMBIQUE

I had PN and physical therapy cleared it up. Not acupuncture but you have to get a very experienced PT person. I saw an ob gyn and the PT person was recommended. Took about 8 months (this was years ago)

Mobay1 profile image
Mobay1 in reply toMOSAMBIQUE

Thank you that gives me encouragement.

AuntieH profile image
AuntieH in reply toMOSAMBIQUE

Hi Mosambique, what were your symptoms when you had it?

MOSAMBIQUE profile image
MOSAMBIQUE

Every time i sat i had an achy feeling in the anal area. when i stood it was fine Ironicall now i have a similar problem but is an anal spasm and only comes after i defectate and is not healing Have tried everything But a good PT should be able to deal with it as long as you are sure that is what you have

AdeleS586 profile image
AdeleS586

I was diagnosed through imaging, and an EMG.

2 CT and 2 MRI.

Narrowed down the diagnosis after my sister Googled my symptoms.

A PM&R doc officially confirmed it.

I have only done pelvic floor PT.

No Surgical intervention or medications. I've lived with symptoms off and on since September 2015.

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