New Pudendal neuralgia or pelvic floor pain procedures

[Pudendal1]

I have pudendal neuralgia or pelvic floor pain diagnosed by several doctors and specialist. I have had this for 15 years and was forced to retire early. I have been to Mayo clinic, Virginia Mason, and other specialist. The procedures that l have had are many blocks ganglion impar block etc., PRP, Botox, Pulse radiofrequency. My question is does hypnotherapy and cognitive therapy help and I have tried physical therapy but the internal made lots of pain latr that day for around 7 days. She told me to. Go to cognitive therapy.. Then come back that might help the problem. Does anyone have any new procedures that can help.

[kalecolbe12]

I went to pelvic floor therapy for about a year and a half and the external work helped but if I had internal it just caused a terrible pain flare so that's when we figured out I might have some nerve involvement once we got the muscles relaxed... anyway I didn't want to do any procedures because I was afraid it would make it worse and I was having anxiety and low mood because of the pain and of course covid was happening where I lost a couple of friends to it,so I ended up going on a small dose of a neuromed which is for nerve pain anxiety and depression and yes it helps all three....that has helped the most...... Mine is mainly rectal so I figure it's the rectal inferior branch of the Prudential nerve. At the CT scans in the MRIs I have never had an MRN which probably will some something I will do at some later date especially if I want to come off the meds, however I am in my late sixties even though I'm young for my age I don't mind if I have to take meds long-term.... I've heard of the hypnotherapy helping and I think the curable app is helpful to address the mind body connection and also I think that calming the nervous system down is super important... I do exercises, stretching, breathing and some meditation all which calm down the nervous system... You might want to check out Nicole sachs TMS on YouTube... I am also in trauma reframing therapy called HMR... Best wishes to you

[AntoinetteD in reply to kalecolbe12]

Dear Kalecolbe12. Thank you for this hopeful information. Would you be willing to share the name of the neuro Med and dosage which helped you? Thank you

[kalecolbe12 in reply to AntoinetteD]

I take 30 mg of Cymbalta mid morning and then I take 200 of Gabapentin at night

[Desperateforrelief]

Hello pudendal1, You mentioned a ganglion impar block - that is for the tailbone. Did they directly block your pudendal nerve? Just checking. Have you tried the interstim? It helped me for a couple of years. I have had pudendal neuralgia now for 12 years. I am getting better. I have gone to PT for 10 years, 1 1/2 years ago I went and the therapist told me I had gotten as far as I can go. I get botox, which helps combined with radiofrequency ablation and my tailbone hurts so I get pulsed radiofrequency on that. I was severely hurt by transvaginal mesh complications. I am a mess, but at least my pain is somewhat better. I lost my sex life at age 49. It hasn't come back. Grieves me. My husband has stood by me and that is a great help. I can get to 0 pain. But I'd say my average is around a 3-4. They have started using stem cells. I had a disc slip on lower spine and had stem cell therapy, that worked great. My back has not hurt again and that was 2 years ago. I am looking for stem cell therapy on my nerve if it can be done. I believe God is a part of my healing as well, I have prayed and been prayed for through this whole time. Yesterday I was able to help my daughter in her garden and take care of her 7 mth son. I was in a wheelchair for 4 years, which was excruciating. I wish you the best of luck, be well.

[RobertVerde]

I feel for you - I have had this condition for 5 years - I cant imagine 15 years. Apparently everyone's is caused by something a little different. The only thing that has helped me live a relatively normal life are: PT with the right therapist, learning how to do self PT, learning to relax the pelvic area through self meditation, exercise & specific exercises and drugs. I take Pregabalin twice a day 150 MG each time and alpha lipoic acid twice a day 600 MG each dosage. I have learned what to do if I feel an attack coming on. Read this book: A headache in the Pelvis. I wish you good luck!

[pizon]

I have had this condition for 5 years now and I take valerian root and hops as well as yoga and meditation along with cardio in the form of walking I tried may drugs and treatments and they made me worse and a prisoner so if you can try to go as natural as possiable ….meditation has been a life saver I hope this helps try to find yourself an herbalist …I am so much better then I was also chiropractic help me in the beginning…when I was trying all the medical things drugs and therapy’s I lost 2 years of my life I hope this is helpful much luck