Pudendal Neuralgia

[MrSwimmer]

Hello,

I am suffering from severe pudendal neuralgia. Despite various treatments, I haven't seen significant improvement. My doctor has recommended sacral neuromodulation by implanting the Medtronic Interstim, but my insurance company argues that there's no clinical evidence supporting its efficacy for my condition and rejected my claim.

I reach out to you for assistance. I need to provide the insurance company with studies, medical evidence, or case reports demonstrating that sacral neuromodulation not only can effectively treat bladder problems but also pudendal neuralgia and or chronic pelvic pain.

Does anyone have information on the matter? Can you help me by providing any relevant information or evidence?

I am desperate and the pain is getting worse every day. Any help you can provide will be very much appreciated

Thank you for your help and assistance.

[JaniceWo]

Perhaps you could reach out to the device manufacturer for study information. Hoping you find the answer to your nerve pain.

[Karen1954]

your doctors office should provide all the necessary treatment notes and things that have been tried!! I tried the Medtronic nerve stim and I think it would have worked if the setting wasn’t changed!!! It’s a good source of hope for u!!!! I’ve always been an advocate of my medical problems and have pushed my doctors to do their jobs!! Your doctors could even write a letter stating why u need this!!! THEY SHOULD DO THEIR JOBS!!!! If u need to talk I’m here for u as I’ve been through EVERYTHING there is to try with no success!! I just had a CT guided nerve block and I feel WORSE!!!! I can’t take much more!!! It’s been bad for 10 years but the last 5 have been HELL!!!!! I’m at a complete loss!!! Please let me know if u need anything!!! Take care!!!

[FROSTY25 in reply to Karen1954]

I have tried all sorts of things over a seven year period. The only relief I get is from sitting on an ice block - it can sometimes help if used from time to time but beware of freezer burn. Other things I use - biofreeze spray which can sting a bit at first but then a lovely numbness follows….I think it is a very mysterious condition but highly debilitating. I wish everyone a lasting solution….

[Karen1954 in reply to FROSTY25]

What kind of biofreeze spray and where exactly do u spray it? Do u spray on your rectum? I’ll even spray up in my rectum but I know I can’t do that !!! lol. Can’t wait to hear from u!!!

[Perry1270 in reply to FROSTY25]

I use a package of ice wrapped in a soft sock ( of all things) Since I have tried everything for the last 9 years. I also use a donut pillow when going out..I put the small ice pack in the center where there is a small circle… it actually helps for awhile. Still have pain and have tried every kind of Dr. and pillow and test. Unfortunately..

[AdeleS586]

The only issue I had with my PN was numbness, not pain. I felt like I had been given an epidural that didn't wear off. I had numbness from just underneath my c-section scar like a sling, all the way up to my lower back.The only thing that saved me was pelvic for physical therapy. There were a number of things they tried. Internal trigger point release. A stim device inserted vaginally. Thor laser and some cupping along my c-section scar,

to break up adhesions in that area.