Anyone requested their MRI on CD befo... - Pelvic Pain Suppo...

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Anyone requested their MRI on CD before?

Wewillgetbetter profile image
8 Replies

I requested mine and I'm waiting. It's been a long time waiting and the scans are already out with the report. This is frustrating me as the NHS should be more upfront with their patients and not withhold information for so long after. Has anyone had success in retrieving their CD? I filled out a form in the hospital asking for it. Did you have to do the same?

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Wewillgetbetter profile image
Wewillgetbetter
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8 Replies
CMFCharlotte profile image
CMFCharlotte

In the USA I always get the CD right after the MRI even before I leave,

Wewillgetbetter profile image
Wewillgetbetter in reply to CMFCharlotte

Yes me too, when I pay privately.

edythe profile image
edythe in reply to Wewillgetbetter

In Germany it's the same; immediate provision of CD!

Moomoosmum profile image
Moomoosmum

I requested mine 2 days ago, so just waiting for it in the post. I was also given the paper copy yesterday by my Dr. this explains to me, the cause of pain

Wewillgetbetter profile image
Wewillgetbetter in reply to Moomoosmum

Did you have to pay for it? How did you request it if you don’t mind me asking? That’s great.

Moomoosmum profile image
Moomoosmum in reply to Wewillgetbetter

hi wewillgetbetter. due to the NHS being totally not fit for purpose in my area, i felt i was forced to go privately (Spire health). i was in there yesterday for my ganglion Impar block. The Dr said they'd found that i have a cyst at the base of my spine that is pressing on the nerves. so whilst it otherwise seemed that I had PND, it isn't exactly. so he said that this was picked up by the MRI. showed my the printed results and immediately got one of the staff to photocopy it for me. I'd already asked the day before that (I rang Radiology) to ask for it on CD. All i had to do is email them with the request, take a photo of my signature, and upload it to an email to them. so that should arrive any day.

Wewillgetbetter profile image
Wewillgetbetter in reply to Moomoosmum

Thank you for sharing your experience. I'm glad you are going to receive treatment. By PND, do you mean pudendal neuralgia?

Did you receive your CD from the NHS or private? Maybe I've slightly misunderstood the post.

Thank you again for sharing! Please update me on whether or not this nerve block works. I am thinking of asking for it even if I do not have a cyst. It's the same set of nerves :(

Moomoosmum profile image
Moomoosmum in reply to Wewillgetbetter

Hi wewillgetbetter,

what stage of diagnosis are you at so far? I've been going to the GP since Dec 2017 and apart from a CT and an ultrasound at the NHS hospital, all the GPs i've seen at my practice have failed to find this cyst, I'm still very angry with the lot of them for fobbing me off for most of this time. Had the NHS done an MRi, the cyst would have been picked up. In fact I googled my symptoms and most of them fit PN.

I got so disheartened with the NHS and the time having to wait to see their pain specialist, that i decided to go privately. There is one who operates in the Manchester area who specialises in neuro pain. I showed him the NHS website where it said about PN. He ordered an MRI for me. It was just yesterday when i saw him that he said the cyst will have been irritating or pressing on the ganglion of nerves that come out from the base of the spine. He'd planned to do the Ganglion Impar block and the discovery of the cyst didn't change that yesterday.

He said, and every site i've looked at since, says it can take a few days and probably get worse before better. so the jury is out on it just yet.

i rang the private hospital for my CD on Monday, so waiting for that to arrive.

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