I have now not sat down for 2 years and 9 months (except on the toilet). It frustrates me that I have had MRI scans whilst lying on my back, which is not my position of pain. As soon as I get out of bed and stand the pain slowly starts and builds up during the day. My only relief from pain and fatigue is to lie down. If I sit the pain very quickly gets a great deal worse.
I have just discovered that it is possible to have an MRI scan whilst standing or sitting, but only in a very few imaging centres, ( uprightmri.co.uk/ ). It seems to make sense to perform imaging while a person is in their position of pain. Has anyone had such a scan and was it useful?