Seriously can't get any help and I am deeply suffering. I have to act as fast as my health is deteriorating. Let me (and others) know what you did to help treat your situation.
So far I heard Rasberry Leaf can help.
I apologise if there are any typos or foggy explanations; I am in a lot of pain and can't concentrate while typing.
Justapatch.com I have found relief with things that mess with electro magnetic field of our bodies. Also shungite cream. Tumeric tables (at least 1,000mgs a day). I have come a long way from where you are pain wise. Do NOT give up. There is much out there that can help!! My life is now 70% back. I do not come on this forum a lot but if you ever want to talk or need help with treatment ideas please feel free to email me. My name is Jennifer and I live in Arizona, USA. My email is 4mycalanderonandroid@gmail.com
Hi Jennifer I too am from AZ in Tempe. What doctors have you gone to that has helped you. I like how much better you are doing do you mind sharing. My e mail is mario.rojas@cox.net thank you Amy Valentine
This may not be relevant to your needs but using the NHS app Squeezy has helped me enormously. It's not a quick fix - I really only noticed a proper difference after a year ( !) but so worth it. I'm now in the habit of doing pelvic floor exercises every day at regular intervals, even when watching tv. Lots of luck and don't give up.
Eulalie
Once I realized that my doctor didn't have an answer for me, I started with chiropractors who helped quite a bit and then moved on to a physical therapist who specializes in the pelvic floor. She is doing dry needling and bone adjustment and it is helping me tremendously. I'm fairly certain my issue was sacroiliac joint dysfunction (which I honestly think is probably at least a secondary problem for lots of us on this forum, as people often react to pain in that area by tightening everything up) so what she is doing makes sense for me, but she also does internal exams and such. I am in the US, so her expertise won't help you much, but my advice is keep looking! The big trick is in finding that one expert who actually understands your condition(s)--and that may or may not be conventional medicine.
One would hope that the job of a primary care doctor is to lead you to those who can help, but I've sadly found that is really not the case--you've got to research and find them yourself. It's an overwhelming job when you're in so much pain, but finding the right help will make it worth it!
As Eulalie mentioned, pelvic floor exercises throughout the day can really help. However, for me they were excruciating until I had the dry needling done. That relieved the pain enough that I could start strengthening the area on my own and now if I find myself getting tight or cramping, I can do some of those exercises and get some relief. Happy to share the specific exercises the physical therapist taught me if they are applicable to your situation and you're interested.
Best wishes!
I would love to know the stretch excercises you do...my pt is doing bone ajustment too but is not doing dry needling..I don't think she does it...I am nervous about trying it but I would ..I Live in Arizona and you mentioned you live in the USA also....I think my next step is Botox in Levator muscles...please email me with info..I am Audrey and email is mbhs21@gmail.com..thankyou
Forgot to mention I can't tolerate internal work at the moment..i am in pain for hours afterwards....I am on muscle relaxers so we can hopefully so internal work soon but I also was reading about this pt who does dct freedom from pelvic pain and he says he has a different approach with this.. resistance excercises which relax and strengthen at same time
Where is your primary pain? What does it feel like?
I'm in Ohio so the PT probably won't be helpful for you, but I will email you with some details soon about the exercises and such.
As far as the dry needling . . . I understand why some people are reluctant but honestly it doesn't hurt at all and, for me, the relief is immense. If you can find someone who does it, I think it's worth a shot to try the dry needling before botox or having pain relievers injected.
Honest truth--dry needling is super easy and does not hurt. At most I felt some minor zings when she got to where she needed to be. For comparison, for me it's way less painful than the exercises AND makes the exercises easier to do. I actually find it rather pleasant. Now, I am not needle-phobic at all, and it does help if you can relax, but I am so impressed with how much dry needling helps me.
I don't know if there is anyone who does the dry needling in my area but I will check...did you get it internally?and if so where ?vaginally or rectally?
I have CBD cream from Amazon that has helped with the intense pain to calm. And my physical therapist has worked the whole body with back pain that I have and has done dry needling. I am in Arizona U.S. and my gut is telling me I wont get better but hoping for little more relief that stays longer. Doctors don't know try to find a pelvic obgyn specialist. They can help And try diazepam it helps calm the pain in the pelvic. Good luck look for a book called heal pelvic floor. AND PELVIC floor explained. They have lot of information
Hi I am also in AZ...phx by Tatum /cactus...also having pelibic pain...going to a pt but she doesn't do dry needling and I am scared to try it....can I ask who your pt is and where located?...maybe I can try her...please email me at mbhs21@gmail.com...maybe we can have our own support system with these other people from AZ..thanks Audrey
Hello. My p.t. is Tiffany Eithereim with a special for pelvic pain at 360 physical therapy. Chandler office 1076 a Chandler Blvd 480.821.1997. Her e mail is tiffanye@360ptaz.com. she is very good in helping with the emotional aspect of pelvic pain and very helpful about helping me feel comfortable while going through the dry needling. Try dr Desai. at dignity health hospital in Phoenix. Women's obgyn with pelvic pain that may help get you some help and maybe get diazepam. GOOD luck
Where did you get the dry needling...vaginally or rectally??my pt doesn't do it and I can't even tolerate her pressing on the trigger points rectally (where my pain is) because it hurts for hours after
Do you mind sharing a link to the cream? Or the name if you can't do links here. Thanks for the info about the books too.
Can you apply the CBD cream into your vagina?
PS I can't get anyone to prescribe diazepam...would love to try it ..maybe my obgyn will when I go for my pap
Are you kidding me? I’ve used Compounded 10 mg. Valium and 1% Lidocaine vaginal suppositories for 10 years....I’d be dead from severe sleep deprivation without them.
You need to write or call your Senator or local government official(s) and explain that you aren’t being medically taken care of! You are being neglected.
Thank you so so much guys for every single feedback. I really enjoyed reading your experiences. I feel not so much alone when I hear your struggles. It's such a tough area to treat and can be complex. I always believe there is a way out of every illness and relief will come.
Has anyone been to Spire Hospital fylde to have prolapse surgery? Or any positive experiences of surgery anywhere in northwest ? 
Anyone in the UK had an MRN scan of the pudendal nerve?
I was wondering if anyone has had botox in the piriformis or puborectalis and what their experiences were?
Does anyone know of a good pelvic pain specialist in the Midlands please? (endo and neuropathic pain)
Extreme fatigue and depression with pelvic pain
