I have had a very successful trip to San Francisco for treatment with Stephanie Prendergast. I now finally understand what is going on in my body. After a lot of pelvic trauma, I have 'Non Relaxing Pelvic Floor Dysfunction'. A very basic summary is that my pelvic muscles go into spasm and when they contract and thicken they put pressure on nerves and I now have chronic pelvic and everywhere pain! I was diagnosed with pudendal neuralgia and unsuccessfully treated for over two years including having 7 nerve blocks in London that didn't work and only made my condition worse. I came back 80% improved which was a miracle for me I have been unable to maintain the improvement here in the UK. One of Stephanies recommendations is to try and get an experienced specialist to give me botox of the piriformis and possibly the puborectalis to support my rehabilitation with my physiotherapist in London. I am finding it difficult to find someone with experience that does botox , though I seem to remember reading that the Bristol team do it?
Stephanie also recommended Khaleed Ayazi to review my medication. I wonder if he does botox?
Thank goodness for the internet with this problem!
Any insight into the world of botox or the horrid world of pelvic spasms would be greatly appreciated. I need to give Baclofen another go too.
Have a good weekend,