Has anyone here experienced post-pelvic-surgery nerve entrapment?
My doctors are suggesting I might have nerve entrapment (ilioinguinal or gastric etc), but the nerve blocks are not really working. I had a laproscopic myomectomy in October and for 8 straight months have been in acute pain (I do not work, am unable to walk, urinate properly etc).
If anyone has had nerve entrapment or damage from pelvic surgery can you explain how you managed this and if you ever got better?
Maybe read ISA Harrisa book on Women’s pelvic pain. Or the MCT course. I am doing both. I’ve not been damaged from surgery but have two surgeries without much success. Hope this helps.
I got the rear section of my right pudendal nerve and a part of my right inferior rental nerve stuck to and visegripped by ligaments. This nerve injury/ neuropathy was caused by a migrated metal titanium Filshie clip.
A unnecessary colonoscopy made what was an indolent forming rectal problem ( I had on and off rectal tingling whenever I sat for over 45 minutes driving or did a lot of heavy garden work ) become a chronic condition.
Every time I sat down, my rectum felt electrocuted. I could not sit! It became life threatening. I was not given proper medical care at all. I was emotionally abused, slandered, gaslighted, dismissed and I had no voice.
All the doctors mistreated me.
They saw a metal clip adjacent to my rectum and they covered it up. They were worried about a lawsuit. No doctor would take it out. I was so sleep deprived when that MRI was done ( no sleep for 7 months ) that I became left in a ‘ survivor mode’ for years.
I was improperly diagnosed with post hermetic neuralgia. The pain specialist never gave me pain clinic I take forms to full in. She did her nerve blocks wrong and said I had vulvodynia. She prescribed medicines that did absolutely nothing to help me but instead made me irritable, head fogged, weak and I lost my sense of smell and taste. Lyrics and Cymbalta are toxic.
I was my own advocate for years. It has completely exhausted me. I did get the nerve released but only because I hired a registered nurse consultant.
I didn’t heal from surgery because that clip was on my rectum!
That clip and another that corroded my intestines have finally been removed after years of suffering terrible neuralgia, pain and suffering.
My adrenals are shot!
Good luck getting help. The docs don’t seem to care....they just prescribe and then label us drug users. They have NO CLUE how much a pinched nerve pain causes. They are cruel.
Your story is absolutely wrenching. Can you tell more about how the nerve entrapment was diagnosed? Was it thru the xray or by symptoms? And what was the surgery and recovery like?
It was diagnosed by having a properly performed fluoroscopy guided nerve block into the root of my right pudendal nerve in my buttock. The doctor used anaesthetic and 80 mg. steroid. I sat pain free for almost 24 hours for the first time in 1.5 years. This proved it WAS the pudendal nerve.
My surgery was a success. The burning pain was gone within days.
Had the clips been removed when this all started and my decompression surgery done on time ( not 2.5 years too late ) I would have healed fully.
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