pianomn still suffering after pudendal block

[pianoguy]

I had the pudendal nerve block ... nothing happened...so depressed...This rectal pain very low near the sphincter just won't stop...can't sit down 10 years now,,,,so frustrated,,,,how can a inferior rectal nerve injury be fixed if at all?????

[Betsy-Blue]

Hi, we chatted on here about 10 days ago...I’ve done much research since... just wondered if you have tried any of the following:-

Manual therapy (Trigger point therapy) by an Osteopath or PT? Do you have any trigger points in your lower half, ie, muscle knots that hurt when you press them? I have quite a few so sit on a tennis ball to massage the knots out, some are very close to my perenium too, seems to be relieving the tightness of my muscles which are causing the burning.

The burning pain may be coming from other areas/muscles in your butt, but causing referred pain & tightness to your perineum area. So I try sitting on the tennis ball over my glutes too. (Easier done lying flat on cushioned floor or yoga type mat).

(I go once a week to an Osteopath & it has really helped). There is also an Internal massage that can be done to help with PN (men via Anus, women via Vagina)... not all Physios or Osteopaths do the Internal one, but they are out there.

Have you tried Accupuncture? this is supposed to be extremely good for PN pain.

Have you tried taking Alpha Lipoic Acid tablets, B12, & Magnesium Citrate, providing you check with your Dr 1st that they won’t interfere with your meds. They are all really good for Nerve pain. I take all 3 of them, pain not as bad.

You may have tried all the above I don’t know, but just mentioning in case you have’nt.

I currently see an Osteo once a week, I think I mentioned to you before, & do the tennis ball trigger point therapy myself every other night in between. I also take all of the ALA, B12 & Magnesium Citrate. Seeing some improvement in my burning.. is now bearable from 7/10 to 2/10.

Just trying to share some things to try, but you may be of already tried. Wish you some relief soon.

[pianoguy in reply to Betsy-Blue]

Can you tell me the doses of those meds you take.... geese just getting the pain down some would be great! Thank you so much

[Betsy-Blue in reply to pianoguy]

I take:-

Magnesium Citrate (brand Solgar)

400mg per day.

ALA (brand Nature’s Best)

600mg per day, but you can take upto 1200mg.

B12 - my bottle doesn’t show a dosage, but it is time released type.

nb. Some of these tablets can lower blood sugar, but generally just check that won’t affect other meds you take, maybe ask Dr or pharmacy.

Also..to mention I bought a special cushion to sit on, it had really helped me to sit a bit more comfortably, as sitting hurt so much before. It has a cover so the cutout bit is not shown to all, plus has a carry handle.

It is called:-

Sero Pressure Cushion Bonyparts Cut out

(Putnams.co.uk or Amazon do it too)

I got Standard size 3”, but they do a thicker one too -if you are on the larger size. I’m in UK so price here is just under £30. You usually can return, so you could try it & see.

I also chatted to a lady on this site called Lottie-Jensen, she had irritated/damaged the Inferior Branch of this Nerve. I seemed to remember you mentioned this area too of your nerve. So it may be worth looking through her posts on here/follow her, see what she is doing/trying/her experiences with this. Manual therapy is generally the starting point/way forward for treating PN along with meds either homeopathic or medical. Providing MRI’s, X-Rays, CT’s havnt uncovered anything more sinister.

Hope any of my info helps you to find less pain and comfort. Chat anytime on here, let me know how things go/any new ideas to try.

Got to keep searching and trying aye...

[BashBash in reply to Betsy-Blue]

Hi,

I am have just read your reply and I would really appreciate if you could help me. I am a 35 year old man, based in London, and I probably have been suffering from pudendal neuralgia (not definitive but clinically diagnosed) for two years. I am struggling to find a physiotherapist (or osteopath) who is specialised in pelvic floor. Could you please recommend someone in London?

[Betsy-Blue in reply to BashBash]

Hi there, I’ve found a bit of info for you, but I’ve not had any treatment in London as I’m not from that part of the UK.

There is a website which shows Chartered Physiotherapists in Europe who use Manual therapy techniques in treating pelvic floor dysfunction.

Pelvicphysiotherapy.com

Once on the site..To see a list of the therapists.. choose/click on the 3 black vertical bars at top right of page, then choose ‘Manual Therapy’, then choose ‘Manual therapists’, then click on ‘England’.

Scroll through the list to see therapists in London & phone numbers shown.

You could ring to double check cost & treatment offered.

In particular Men’s Pudendal Nuralgia, Manual and trigger point therapy.

I also found another site:-

thepelvicpainclinuc.co.uk

2A Prebend Street, Islington, London, N1 8PT.

The owner/Director & Pelvic pain therapist is Karl Monaghan. He is also on ‘Linkedin’’

& his bio reads quite impressive.

He appears to predominantly treat Men with Pelvic pain (one of only a very few). It also mentions Pudendal Nerve treatment & Manual Therapy and Trigger point too.

There are prices also shown. Again ring up to double check treatment options and costs.

Hope this helps as a starting point for you. I’m lucky enough to find a lady on here who gave me a Physiotherapists name on here, who does Internal & External Therapy not too far from me...plus I currently see an Osteopath who does external Manual/trigger point therapy.

I’m having an MRI soon, but then if that doesn’t show anything, my next avenue is an MRN T3 Tesla scan... (shows nerves) will have to get the cost though. Meanwhile still keeping the therapy up..

The ultimate goal of the Pelvic floor physical therapy is to release the tight muscles and relieve tension on the Pudendal Nerve.

Also try not to clench you buttocks, not easy when ‘we’ are in pain or anxious I know, but this clenching is adding to the tension there. Hopefully with therapy these muscle knots will get worked out... seemed to of worked for quite a few people in what I’ve read.

Wish you well with everything. Hope my info helps you get started... we’re all on this awful journey, but we’ll get there.

[BashBash in reply to Betsy-Blue]

Thank you very much for your reply. It is really helpful.

I had MRI a year ago, it showed no abnormality in my pudendal nerve. However, my symptoms are consistent with pudendal neuralgia. My pain is actually not severe, I can say that it is most of the time 2-3/10 but being it constant is so annoying and affecting the quality of life. Besides, I am always anxious and concerned about the potential worsening of my pain in the future. I feel that, to a certain extent, can deal with my current level of pain but I don't know what to do if it gets worse.

Finally, I have a question for you, does your pain get better when you are drinking alcohol and quite worse the next day? This happens to me and it hence indicates doubts regarding my diagnosis.

Thanks again. I really appreciate your support.

[Betsy-Blue in reply to BashBash]

Hi, I havnt drank alcohol since being on meds for PN. Frightened it’ll make pain worse. Alcolhol interferes with meds, but I know it relaxes you when you are drinking so you muscles tend to relax, hence pain seems to go from our butt muscles, but it is only temporary. Then the next day the Alcohol would of interfered with the meds working fully so would stop them working to a degree, hence increased pain the next day I would imagine.

Also, another lady on here posted she had had Manual therapy treatment in London, so I’ve asked her who with .& address. So when/if she reply’s i’ll Let you have these details also.

[Betsy-Blue in reply to BashBash]

Hi BashBash, just had the lady on here reply to my message for you..

Here name on here is FernH1 if you want to click on her link to see the her original post of this London Therapist.

Or... see sayerclinics.com,

She originally saw Dr Michael Durtnall, then after some therapy she was referred to one of his other therapists.

FernH1 recommends him.

He does treat Men and Women.

It is private treatment though. So check prices.. best Wishes

[BashBash in reply to Betsy-Blue]

Thank you very much.

I started considering something new about which I have been reading some good feedback and successful stories of partial or full recovery. It is called Dynamic Contraction Technique (DCT), a new method that was developed by a previous sufferer from pelvic pain and a professional physiotherapist. It is a kind of workout that you need to commit to for a bit long time. It is cheap and does not involve any medication. I might give it a try and see how it goes.

[Betsy-Blue in reply to BashBash]

Yes I’ve recently heard of DCT too on this forum.. gathering info about it, looks quite promising doesn’t it. Hard work though... but probably worth trying.. just over £200 for UK.. I’ve spent so much more seeing my Osteo in 7 years! Let me know how you get on & vis-Versa. Best regards.

[willemine]

I had a block too didn t help eather . Nothing helps only keep moving soft with PT icepacks and opiods lowers my pain levels a bit. I am active for 3 hours the other 12 i lay in bed . It s dibiliating pain I also have PN i only can sit on my knees on a yogabench white a swimmingboard on top of it with a hole in it maybe you can try that .I transport myself on a step ( two wheels no sadle)

[swarke22 in reply to willemine]

I have had similar pains for eight years now and been to over twenty doctors. Had the pudendal nerve blocks and decompression on both sides. Had nerve removal in the United States and still have the pain when sitting and laying. I recently read when looking into other things that a woman in the States (I’m in the u.k) started taking threelac and Candizolv because she believed it was down to overgrown candidiasis. I started the protocol about six weeks ago into a seven month programme and feel marginally better with the pain but my brain is brilliant with no more feeling of suicide. Overgrown Candida can wrap itself around organs, muscles etc. I’ve also noticed my urine has a strange smell now which the lady in the states said happens as the Candida dies off. The lady I states now sits and drives with comfort and stays on a daily packet of threelac to keep the Candida from over growing. I will let you know how I go on but several months to go on this but I just know this will help me greatly.

[Pelviccrusader]

See my reply to Andilynn. So you think it’s the rectal branch of PN? 2 vastly underused treatments are class 4 laser treatment (and important part of the nerve is superficial) and neurocare to increase bloodflow-this is used in some chemotherapy centers to treat neuropathy.

[Betsy-Blue]

Hi,

Just want to draw your attention to posts on here about DCT. I’m considering doing this.

See BashBash post further down on reply’s on your post here.

Also if you type in the search box the word DCT,

another post comes up with a series of reply’s.. have a read and see what you think. Also see the website mentioned about it

freedomfrompelvicpain

There are quite a few people trying DCT, muscle resistance training, with great results by all accounts.

Just thought I’d make you aware as I know your pain is quite severe. Maybe worth a try...best regards.