Log in
Pelvic Pain Support Network
10,972 members3,410 posts

Pudendal Neuralgia..getting block,,, please respond Thanks

Has anyone ever had a pudendal nerve block and it helped them with the rectal pain and sitting down.... On Lyrica, xanaflex and small does of percoset 10mg.... I have to take this cocktail 3x a day to get through day,,,sick of,,,,,,plus that with the lexapro renders you totally unable to even feel a sexual orgasm,,,, talk about a disease that adds to your depression,,,, have no idea what to do,,,, help! Than all and I sympathize with all of you,,,,,10 years 13 surgeries and still can't sit in a chair without unbearable pain,,,,,,also had my coccyx removed in 2013,,,, that's enough

32 Replies
oldestnewest

Hi. I am so sorry for what you have been through. You are a strong person.

I have had ‘fluoroscopy guided’ pudendal nerve blocks into the nerve root in my buttock. The doctor MUST USE anaesthetic AND steroid. My doctor used 80 mg.steroid. I sat for 24 hours. That block was a diagnostic tool to prove that the rectal branch of the nerve was injured.

It wore off because the rear branch of my right pudendal nerve was truly entrapped. Surgery proved just how bad. That nerve section had stuck to ligaments and fascia in my ischial spine.

I HAD TO have decompression surgery or I was going to die. I’d been left over medicated and sedated for 3.5 years and finally through hiring a registered nurse consultant, I got the surgery in Minnesota. Good luck. The blocks don’t hurt if they are done correctly.

1 like
Reply

Konagirl60, did your surgery help your rectal pain? I was diagnosed with PN from Dr. Hibner in Phoenix and was doing better for about a year and a half. Not pain free but managing it and down to taking Dilaudid once a month. This last week have been hit with the most horrible rectal pain and pressure ever plus it is radiating into my left buttock with stinging achy pain. I cannot face the 24/7 pain I endured for several years again. I was disabled in bed, not able to function. This scares me.

Reply

Please don’t panic. Stress exacerbates nerve injuries. I know how much this hurts. A product called Pascoflaire ( Passion flower ) will help calm your nervous system and alleviate anxiety.

Can you be seen by.neurologist to have a pin prick analysis ? Have you seen any neurosurgeons yet? What do they say?

Did you cycle or do some activities that required a lot of stooping, lifting and bending over your groin?

Reply

I'm so sorry for you

1 like
Reply

Pianoguy. I went to a group I am in on Facebook called Pudendal Neuralgia Hope and this is from Devan Swift on ther and about the Stim Wave. No amount of nerve blocks have helped me either ~~~FROM DEVAN SWIFT

I want to say thanks for all of the thoughts and prayers. I had a trial nerve stimulater implant surgery with new technology and new methods yesterday from StimWave. It was the answer to everyone's prayers. I walked around the block today, without stopping and didn't yelp with nerve pain once. Anyone who has been around me knows this seemed impossible to achieve. I will continue this trial until Wednesday then they remove the leads and I will be scheduled for four permanent implants. Thanks again. I'm blessed to have my family, doctor and PN friends! This stimulater is still evolving as the FDA approves levels and controllers. Anyone who suffers for PN or IC this is the path to nornal. I even drank a cup of coffee to see what happened, Nothing happened, no pain, no lighting bolt nerve pain. It's just like someone turned off my PN and IC switch. There is hope, and everyone will find relief, so don't give up.

EVERYONE NEEDS TO READ THIS!

Reply

If you are taking Lyrica and you have Facebook go to Lyrica Survivors International..I hate to say this but it's not a good drug.

God bless you Caren/Lambloved

Reply

I keep expressing to others than tell me they are taking it--ITS POISON...should be taken off the market.

Reply

Are you a doctor???

Reply

Also see "SeeMealive2 comment below. Love and God bless you Caren/Lambloved

Reply

I don’t think you should make such a “shotgun” statement. What does not work for one person may work for others. I work with 2 people that have received amazing results from Lyrica. I myself use it. When drugs work people move on with their lives only those with bad experiences usually leave negative reviews.

Reply

There are a whole group of people who have had problems with Lyrica. It's is a bad drug if you go the Facebook page called Lyrica Survivors International and read about it. And no I am not a Doctor. I have just seen how many (a lot) that know the reasons why it's not a good drug. One thing I have seen on T.V. and I can't remember the name of the drug, but a side effect is it can cause a certain type of cancer. My question. WHY WOULD YOU WANT TO TAKE A DRUG WITH THAT POSSIBILITY SIDE EFFECT? Not yelling I do that when I am intense about something. You check out the Facebook page and then you have to decide. Personally it gave me problems which is how I found that Facebook page. I do make suggestions to people because I care and love all people. God bless you Caren/ lambloved

1 like
Reply

I've had the pudendal nerve blocks, yes they are helpful if done right. I'm ready for surgery with a doctor that has discovered a les invasive way to fix this (these--as they run on both sides) by resecting the nerves and implanting the ends into the obturator muscle to prevent reoccurrence. I'm excited and will repost after surgery since I've (NOT) lived in misery for 9 years of so many misdiagnosis and therapies. The drugs are horrible--and he gave me the award of the day for longest list! For me....the Lyrica was the WORST! I still have lost memories from taking it, and always walked around like a dunk! I was being overdosed--so please read your insert! Maximum dose of 450mgs a day???>I was taking 600. Also check web md for those interactions. Best of luck.

1 like
Reply

Can I ask where are you having the surgery carried out?

Reply

Surgery will be performed by Dr. A. Lee Dellon, in Towson, Maryland. The Dellon Institutes for Peripheral Nerve Surgery. He also has office in Henderson, Nevada.

Reply

Dellon institute is we all wish we could be treated...your in great hands....my Medicaid doesn't cover Dellon....uhhhggg 10 years 24/7pain, some so unbearable I'd panic which just made it even worse...dr's are clueless about pelvic pain ...the rectal pain is constant. Cant sit down 10 years or lie on either side!!! Sleep is almost impossible without muscles relaxers and ambien....enough enough please GOD please help me....if u had a pudendal nerve block please let know is it helped...out off options ...thanks all.......aldo

Reply

Sorry to say for me nerve blocks didn't help me for more than a few days. Father God I ask that you heal my precious sister in Christ ABBA( Daddy) FATHER according to your promise in 1 Peter 2:24 that by Jesus name Amen and thank you FATHER for answering my prayer. Love you in Christ Caren/Lambloved

Reply

I one actual "pudendal' block--it did help for 6 months! Dr. Trent Emerick in Pittsburgh..Mercy Hospital Pain Management...his 'helpers have done it to me,> NO!

Reply

9 years of every type of doctor, every medication, and therapies......and he says I'M PERFECT FOR THIS! ….is WHY>I need to LIVE, not exist.

Reply

Wishing you every success!!

1 like
Reply

Maybe once you gain strength post op you'll update as to your progress.

1 like
Reply

had all my injections done in Pittsburgh-UPMC..Mercy Hospital: Dr. Trent Emerick

1 like
Reply

I had to fight my insurance to cover him...still have to give $4,000 up front, he wanted $18,500. It took a week of conference calls to get approval. He is teaching his technique, but are other doctors who do something with the Aclock ?? glands, nerves..?? like the 'normal' way to fix the pudendal nerve. I wish I had better solution for you! I had given up.>9 years! My chiropractor has helped a lot too cause my lower back was always out of place for the 'guarding' the area of pain. *PRAYERS!*

1 like
Reply

What insurance do you have? I was under the impression that Dr. Dellon doesn't take insurance period! I pay through the nose for individual BCBS PPO, and am hoping he has changed his policy! Good luck to you! It is no life living with chronic pain (I have both PN and IC).

Reply

He doesn't --pay up font and be reimbursed. Luiann helps you with the paperwork to have that happen. Mine is UMR..United Healthcare via government employee plan. They will cover so long as they agree to do it as 'outpatient'--which it is.; and as 'Usual and Customary'...….She has been a God sent angel in my case. They both 'just want to help people!'

1 like
Reply

Thank you, and the best of luck to you! Hopefully one day we won't have to fight our insurance companies to get the help we need:)

Reply

I told them--its saving them money!> for 9 years, 33 doctors, tons of meds, therapies -ect=they've paid for it all! with no questions!--kinda sad..often wished they would 'red flagged' me to try to help.

1 like
Reply

Sooo true! When is your surgery? Please keep us all posted!!

Reply

surgery: Wednesday December 5th 8:30 am EST. prayers!

1 like
Reply

Very best of luck. X

Reply

Best wishes for a great outcome!

Reply

Gods speed to all on this thread...no one knows the pain and hopelessness....

1 like
Reply

I take as many meds for depression and anxiety for this condition as I do pain medications!

1 like
Reply

You may also like...