GC01

[GC01]

I was suffering from a rectal prolapse so my GP suggested going to see a Gynaecologist who went through the things that could go wrong in a operation like perforated vowel or bladder so I went away not wanting an op. The prolapse was not getting any better so I went back to the Gynaecologist for the op. She also said she would repair my pelvic floor (which I thought wasn’t an issue but after 3 children not the best). After talking to a few people who had had this op, they all said it’s definitely worth having. When I went in for my op it also had down a hysterectomy which was not discussed and when I queried this they said it’s just in case when they do the op it may need talking away. I’m 54 so no more kids so went for surgery. Had op in June2018 No hysterectomy needed. Op was ok and after 6 weeks was signed off by Gynaecologist as a success. I thought all was fine but after about 12 weeks started getting dragging feeling, pressure and throbbing in my Virgina. Lower pain on my ro side and back pain. My Gp sent my for a scan all ok. I was in so much pain I paid to go private to so the Gynaecologist who just said I was dry and prescribed Estriol cream for 6 weeks. She wasn’t interested in my pain. Obviously this didn’t work. She then put me on Pregabalin and this did ease the pain. Another visit and was told it was nerve damage and I needed to go back to GP for pain management. I was so upset she didn’t explain anything. My GP has referred me to another Gynaecologist for a second opinion and I am waiting for appointment. I feel like my life has changed so much. I cannot even think about having sex. My poor husband doesn’t know what to do with me.

I don’t want to be on Pregabalin for ever but when I have tried other tablets they have to many side effects. Can anyone suggest anything. I’m at my whits end.

[South_east]

I had a friend who was experiencing problems with a prolapse and she said physical therapy was the best treatment. Also do kiegal exercises every day it squats. Doctors won’t suggest anything other than writing a prescription. I have been having the same problem with pain during sex lower abdomen pain and lower back pain. I think I have a prolapse because I have to strain when I have a BM but I am not constipated. I also have bladder pain and frequent urination. When my obgyn inserted one finger in my vagina during an exam it was so painful. He said it was hormonal. He also wrote prescriptions for HR drugs. I refuse to take that junk.

[SuzyQ]

Dear GC01,

I can’t tell you how sorry I am to hear about your situation.

(I have re-read my reply to you and am concerned that it is rather a negative and bleak post. Please don’t be discouraged. I am only being honest about MY situation. Perhaps some of it might help You. I hope so.)

Are you in the UK?

I think that you and I might be in a very similar situation unfortunately.

I am just wondering HOW they performed your operation? I would imagine that it would have been done vaginally rather than through an incision in your abdomen...?

I had a Vaginal Hysterectomy in 1994.

Unfortunately, whilst my legs were up in the stirrups, they were dropped, and allowed to fall too far apart. As I was under general anaesthetic my ligaments had no resistance, so my pubis symphysis was pulled apart, my sacro-iliac joint was pulled out of alignment, and other damage was done.

I now know that when they were trying to put me back together, my pudendal nerve was trapped.

This is what was the cause of ALL my problems.

The Gynaecologist who performed the op did a second procedure and told me that there was nothing wrong and that the pain was all in my head.

After years I found someone who finally believed me and did some nerve blocks into the nerve. I was painfree for the first time in 14 years!

Unfortunately he couldn’t release the nerve as it had been trapped far too long.

The nerve block was only a diagnostic tool, so didn’t last long.

Eventually I was fitted with a sacral stimulator, which has helped some way to reduce the worst stabbing and burning of the nerve, but it hasn’t gone completely.

My advice to you would be; IF it’s nerve damage and you didn’t have it before your operation then you go back and ask HOW it happened.

They will always try and cover their backs and deny anything happened. We fought for years before we got any answers.

But if this occurred to you fairly recently there is a chance that the nerve COULD be treated before your situation becomes chronic.

As I said at the beginning, this is a very sad story. But there’s some hope for you as you are only a year on from your surgery.

I am sending you lots of best wishes and gentle hugs. I completely understand everything that you have written and I genuinely hope that something that I have said is helpful to you.

I don’t post much anymore as I felt I had nothing positive to contribute. But I received an email suggesting that I might be able to support you, so I am sending this with all best wishes and hope for You.

Sue xx♥️xx

[GC01 in reply to SuzyQ]

Hi,

Thanks for your reply.

I am in the UK.

My op was carried out via the virgina.

I am looking for a woman’s physio for pelvic pain. All the physios that I have rang, have told me that it’s a specialist that you need.

Going to another Gynaecologist in June so they may recommend one.

Thanks for your support.