Argh - what on earth is wrong with me?

[endotheline]

Big sigh... I have no clue what is wrong with me. I've had a niggling pain deep in my right pelvis area probably for about a year now. It's almost hard to explain where the pain is - it feels so deep rooted, I don't even know what body part or organ is in that area.

After having endometriosis removed in March, the pain is still there.

The last month, it's got worse.

Last week I was in such agonising pain (and really bad diarrohea too - sorry for TMI :() - it's still there, just twisting away, and I have no clue what the issue is. I tried to get a GP appt - you now have to fill in this stupid form and I listed everything in detail but they've just given me an appointment in over 2 weeks' time!

So frustrating... anybody had anything similar?

(PS also had my appendix removed about 10 years ago... when I google it, it always points to appendicitis).

[sarahalice]

Hi

I'm sure my right side pelvic pain is due to pelvic congestion syndrome. I have very similar symptoms as yourself.

Do you have an varicose veins on your right leg?

If it is good luck with anyone taking it seriously or getting diagnosed.

I've been like this for 3 yrs, being passed back and forth between gastro and gyne when I need to be seen by phlebologist, however but the nhs don't really have any.

All the best and I hope you get better , Sarah

[endotheline in reply to sarahalice]

I don’t have any such veins so it’s a mystery. Thank you… I do hope so. It’s so depressing.

[Konagirl60]

See a doctor and if you can go private.

I’d try to lose some weight IF you can. Doctors nowadays will blame your weight.

You need to be seen by a neurologist and a rheumatologist. I hope you can be seen in a Pain Clinic where you’ll be taken seriously.

[endotheline in reply to Konagirl60]

Thank you. I definitely don’t have any weight to lose. Well I could but then they may blame it on being underweight. I’m about 5ft10 and approx 10st12. It’s kinda bang on ‘healthy weight’. I do agree they blame weight on everything.

[Konagirl60 in reply to endotheline]

Don’t give up. Keep me posted.

[Normie-Orms]

Hi ya. I've got pelvic pain centred around mt pubic bone. Nobody knows what's causing it. Psychological they reckon as no scan shows anything. Swimming in the sea and cannabis are the only cure

[endotheline in reply to Normie-Orms]

Waaaa. And I can’t swim!!!! Haha!! No chance for me.

[Suki68]

it sounds a bit like diverticulitis or ibs too

[endoTHENmesh]

I live with right pelvic pain that is deep enough to be near the inside of the hip head.

I have discovered that in addition to removing endometriosis, the surgeries have left lots of adhesions. The adhesions are so bad that each AM I massage my lower abdomen so my intestines are able to process food (and in some areas allow it to pass). I live in fear of an intestinal obstruction.

I would suggest that you see someone about myofascial release therapy and see if that helps. If it does, I would suspect adhesions. Adhesions do not show up on scans unless it deforms the shape of organs. More surgery will only make it worse. Take care!

Or not? Try it!

[endotheline in reply to endoTHENmesh]

Wow… that really sounds like it could be what I’ve got. I’m going to look into everything you’ve said. Wish you all the best… the things we go through xx

[Midori83]

Hi, sorry to hear that!It sounds more like muscle spasms, possibly caused by a neuralgia of one or more pelvic nerves (genitofemoral, iliohypogastric and ilioinguinal). Is the pain located at the front, close to your groin? Usually, pelvic surgery causes or makes this problem worse.

I got my diagnosis from a neurologist and I am on a waiting list for the pain management clinic. Also, you should see a pelvic health physiotherapist and possibly even an osteopath.