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Pelvic Pain Support Network
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Pelvic pain/ Symptoms like Endometriosis

Hi guys, I'm new to this website but was suggested it to see if anyone could give me any advice or tips on how to manage my pain. (Sorry in advance for a long post!)

I have had years of painful periods, and over the last year or so the pelvic pain has been getting worse, causing pain during exercise and sex. I have seen numerous doctors and specialists, had an ultrasound, and had a laparoscopy to find out if I have Endometriosis. The scans and laparoscopy have shown the doctors that things are "essentially normal" but I am frustrated without a diagnosis. And without a way of effectively managing the pain, I am missing lots of time at work every few weeks which may mean I have to attend a disciplinary meeting.

I do not want to be off work and would love to be "normal" but the pain can be so bad that I can't eat, sleep and move around. I have been into A&E before, and had an ambulance out because I couldn't move because of the pain which was unbearable. So I am saying this is NOT "essentially normal" and I need help.

I have been recommended to be on the Pill and have been on Microgynon for the last couple of months as I was recommended to take three packets in a row (i.e. 3 x 3 weeks of the Pill, without a break) with the idea that this would mean I would not have the pains until the 9th week when I would have a period. This has not worked and I have been experiencing a lot of pain which seems to occur on the third week of each packet.

I was prescribed Mebeverine, a medicine to prevent the spasms and cramps my uterus and bowel are going through, but so far it has not helped at all.

Painkillers do not usually help; I have tried paracetomol, ibuprofen, mefenamic acid and codeine. The only thing that seems to help a bit is a hot water bottle and rest.

If anyone has any suggestions, please let me know. I would appreciate any help.

Thank you.

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