Last June I started to feel like I was getting a UTI. Mild dull pelvic ache around the mons pubis area, and the feeling of needing to urinate when I didn't - again very mild. Was put on around 6 different types of antibiotics, even though urine samples sent to lab came back negative for infection. In July I was admitted to hospital for investigation as my symptoms were very gradually getting worse. Still UTI thought as culprit. Urine and bloods clear so that theory was quashed. I had a cystoscopy done which I found very painful in the urethra. Bladder wall "looked perfect". I had MRIs and ultrasounds, all clear.
My urologist who did the cystoscopy said it was a tight pelvic floor that was causing my pain. I've had a tight pelvic floor historically, and never had pain like this. I've been getting physio since and my physio says yes I have a hypertonic pelvic floor, but not 100% sure this is the root cause.
Now, my symptoms are what feels like constant sort of burning pain in the mons pubis area. I just can't tell from exactly where, above or below the pubic bone. It could be my bladder. Wearing tight clothing makes it worse. I'm wearing underwear 2 sizes bigger than my size. Sitting doesn't help, I feel the mons pubis/bladder pain worsens. My urine stream seems slower, and hesitates a bit. Sometimes it takes a bit longer to start urinating, other times I start pretty much straight away. Sometimes I get pain when urinating, mostly what feels like some kind of wave of discomfort when I finish urinating - a spasm? I feel something similar to the urge to urinate all the time - that sharpness. Although I just ignore it and can go 7 hours without urinating (Netflix binge on Xmas day!) Sometimes urethra burns when I urinate, though not always. If I try and jog, all the pain and needing to urinate feeling increases immediately, and I'll have to pee 4 times in one hour, feeling like I'm desperate to go - I'm not!
When all this started, I was training for a marathon. And stupidly, I was doing Kegels when I shouldn't have - already had a tight pelvic floor. Just before the mild UTI symptoms started in June, I had two separate instances over the space of a week where all of a sudden I went from not needing to urinate at all, to feeling desperate. When I went, not much came out. But later would urinate normally. This was the very first symptom of all of this. Unfortunately I could have had a UTI at the time, but just went onto antibiotics without a urinalysis.
Here's the confusion for me - I had a pudendal nerve block which temporarily got rid of 90% of my symptoms. I was thinking I could just have bladder spasms, I'm on medication now for that but not on it long enough to tell if it's doing anything - Betmiga. I do feel my symptoms are predominantly bladder related, I wasn't sure how the pudendal nerve could be involved. But it must be, if the diagnostic block got rid of the pain?
Any thoughts/experiences/comments most welcome!